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AshleyJenexoxo’s Profile
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AshleyJenexoxo
is feeling Good
About Me
I'm 16 years old, pretty out going and I really just need someone I can talk to who understands what it is like to be a teen with Narcolepsy.
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Recent Activity
June 20
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AshleyJenexoxo replied to pkarmstrong’s discussion post Muscle weakness? in the Narcolepsy support group 10:13pm
YES. I feel weak all the time, I think its not listed as a system because it is something that comes…
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Hugbook
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i keep a blanket and pillow in the cars so i can pull over and sleep if i start to feel tired some times it i'm fine then i have to pull over and i call my husband & he'll call and wake me up so i don't sleep all day or over night. i lost my job being a bus driver which is really hard
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take care of you
Prayer
I guess on these things, no news is good news, hope so anyway, party on !!!, ASH
Hug
just sharing some love xx
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Hey Ash, its Ash, what yer up too, okay we all give in you got the most responses in the NARC Support Group, I think you and clairemargaret are in some competition....only kidding, hope you are sound at the moment and kicking ASS, Ash x.
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Support Groups
Close Narcolepsy
My Symptoms started to show about a year ago, but they were pretty mild. I didnt get diagnosed until The summer of 2007 and even then my symptoms werent too bad. Its progressed alot since then. I have frequent Cataplexy attacks but not full body ones[thankfully]. I Just sorta take things day by day.
Treatments
- Provigil Working / Worked
- It gets me through the day....When i first started taking it, it worked really really well but not anymore =[
