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  • Image of talon331

    About Me

    I've had MS and ITP for many years. Far too young in my book to have either disease but that is life. People tend to think that when I am down and out that I am giving up. I need to make it clear to all I never give up on anything especially myself. I look at it as I've spent too much time, too much patience, and too much effort in treating my diseases to take care of myself to give up now or ever. I don't hide behind walls or anyone else, and I tell the truth. Some people can't handle that but, that is who I am.

    Interests

    Dating, putting my life back on course, and realizing some people never grow up and will never understand what it takes to be an adult.

  • Recent Activity

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  • Journal

    • This entry is private

    • Journal Entry for June 16, 2008

      Mood June 16, 2008 4:13pm

      Tomorrow is the official 10 year Anniversary of me getting dx'ed with MS.  Life has been interesting since that diagnosis.  Granted my …
    • Father's Day

      Mood June 15, 2008 3:49pm

      Today is father's day as you all well know.  A couple of days ago on the 12th was the 9 yr anniversary of my father's passing.  I …
    • This entry is private

    • Journal Entry for June 13, 2008

      Mood June 13, 2008 1:07pm

    Read Journal

  • Hugbook

    Give talon331 a hug

    • Hug

      From disa June 28

      lovely day 2 you

    • Hug

      From shogun525 June 24

      not sure how this works... i got ttp 7 years ago and doc's had no idea what i had and ended up dying 3 times, been in a world of hurt ever since, dealing with depression and feeling alone ever since, just googleed this tonight and am feeling so hopefull right now cause i have felt so alone, keep on keeping on man cause your helping guys like me, and im down and out thinking about the worst, and just reading you little post made me feel so hopefull.

    • Hug

      From PinkyLou June 22

      so far I swear I have filled up half a dumpster. oy...and that was just your ex wife.

    • Hug

      From PinkyLou June 21

      still cleaning...stopped for some bowling. btw..you suck.

    • Hug

      From hunterD June 21

      sorry about the past year hope the next year is great for you!

    Read Hugbook

  • Goals

    Progress

    50 %

    Goal End Date is Mar 31, 10 630 more days.
  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Seconday Progressive MS

      13 yrs - since I noticed symptoms 10 yrs - since diagnosed with MS Dealing with life with MS since and its social consequences and misunderstandings

      Treatments

      Avonex Working / Worked
      Flu Like symptoms, fatigue. Strong medicine but I used it successfully for the first 5 years once I was diagnosed.
      Copaxone Working / Worked
      Very few side affects for first 100 days or so of use and then experienced trouble breathing and turned as red as a lobster. Tried again a couple of weeks later but cause problems with another autoimmune disease that I have ITP
      Novantrone Working / Worked
      Currently using. One flare up in 19 months. Longest period of time since symptoms began between flare ups.
      Physical Therapy Working / Worked
      I did this a couple of times as things change with MS so do the exersizes
      Prednisone Working / Worked
      Take as needed for both my MS and ITP Drawbacks are emotions and depression.
      Provigil Not Working
      Tried on 3 different occasions and never worked for but 1 time and that time was worked way to well
      Rebif Not Working
      Never worked for me. Tried for 1 month but the site reactions for me stayed for weeks and not for days.
      Solumedrol Working / Worked
      This worked as a quarterly pulse and after flare ups until it started to become ineffective during and after flare ups
      Swimming Working / Worked
      Swimming is good just for the fun of it.
    • Close Thrombocytopenic Purpura

      diagnosed 9 yrs Its been up and down since (chronic) I still have my spleen.

    • Open Sexually Transmitted Diseases - Male
      Type: Genital Herpes

      I won my divorce. My X is whom this came from. Separated in August 07 from her and diagnosed 2 weeks later on second outbreak. Too say I am not happy is an understatement. I already suffer from 2 autoimmune system diseases (MS & ITP) which this disease is going to complicate their treatments and could very well threaten my health and life directly or indirectly because I am immuno compromised like a Cancer or AIDS individual. So that's the deal.

      Treatments

      Valtrex Working / Worked
      Still new on this disease
    • Open Breakups & Divorce

      Treatments

      Support from Friends & Family Working / Worked
      Talking Working / Worked
    • Open Depression

      Treatments

      Cymbalta Working / Worked
      This one works great
      Effexor Somewhat Helpful
      it worked so so
      Lexapro Not Working
      didn't work
      Positive Thinking Working / Worked
      I try
      Support from Friends & Family Working / Worked
      works most of the time when I am understood
      Zoloft Working / Worked
      worked 50% of the time
    • Open Physical & Emotional Abuse

      I just got out of an emotionally and mentally abusive marriage and divorce. Just looking for advice on how to learn to quickly spot and to avoid getting involved with another person who is abusive. I should also tell you that I am a man and never thought that any woman was capable of doing that to me but, I was wrong.

    • Open Autism / Autism Spectrum

      Here for my friend

  • Groups

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