Journal Entry for November 30, 2007
November 30, 2007 2:50am
Ok, I am going to try and write in the journal every day. The holidays are really a struggle for me this year. I see the cute kids in …
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BethEppley’s Profile
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BethEppley
is feeling OK
About Me
My son Christopher has Mitochondrial Disease Complex 1 and is in advanced stages. He requires a ventilator to breathe and has a permanent IV line for nutrition. I work at home and also take care of Christopher full time.
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Recent Activity
- Sorry, there is no activity in the My Activity feed.
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Journal
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Journal Entry for November 29, 2007
November 29, 2007 6:04am
The third time is a charm (writing the journal entry). If I can write a journal entry without deleting it that would be a miracle in …
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Journal Entry for November 20, 2007
November 20, 2007 11:45pm
My son is having blood sugar problems. Pray that we wont have to go to the Hospital this year for Thanksgiving. Last year we spent all …
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Journal Entry for November 14, 2007
November 14, 2007 7:47pm
I don't know if everyone can read this, but if they can I want to thank you all for your kind words and thoughts. Unfortunately I did not …
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Hugbook
Hug
I would like to offer my support to you and your sons struggle. My wife also suffered from MELAS and if you have any questions or need some support I would like to try and help. Take Care
Hug
I can't begin to understand how you feel, but as a mom and grandma, it hurts my heart to read what you and your little guy are going through. God bless you and your famiy and give you strength. I have never heard of this illness before. Hugs and prayers to you all, Donna
Hug
Hi thanks, a *HUG* for you, hope you're ok, take care.
I’m With You
you are an amazing mum Beth and you are going through a lot. Take Care
Prayer
Hello, Iam sorry for your son,I have no words,this is a terriable disease.I beleive in the power of prayer and your family has touch me.I pray that you stay strong for your beautiful baby. Take care Love wedad
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Photos
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Support Groups
Close Mitochondrial Diseases
My son Christopher has mitochondrial disease in advanced stages. I am looking for other people to connect with who are going through the same thing we are.
Treatments
- CoEnzyme Q Somewhat Helpful
- Was somewhat helpful in the beginning of his onset, but now not much seems to help....
Close Caregivers
I am taking care of my 3 year old son who is ill with Mitochondrial disease. He is bedridden, has a GI tube, ventilator, tracheostomy and more.
Treatments
- Music Therapy Working / Worked
- My son loves music. It helps him cope with his pain.
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Friends
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Snapshot
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