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      From kc61 November 11, 2007

      Welcome to the Epilepsy Group!

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      From suewongi November 11, 2007

      hope you find great support with ds like i have i have suffered with epilepsy for 25 years now take care love susanx

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    • Close Epilepsy & Seizures

      Treatments

      Ativan Working / Worked
      Used for seizure clusters
      Depakote Somewhat Helpful
      did ok, then it stopped working. Had to increase, then she became toxic. she is on this medication again but at a much lower dose.
      Diastat Working / Worked
      Used for prolonged seizures.
      Felbatol Working / Worked
      After failing the ketogenic diet due to behavior problems we have decided to try felbatol. So far she is doing better on this than anything else.
      Keppra Not Working
      Tried this one twice, both times she became very agressive.
      Klonopin Working / Worked
      she is on .25 mg three times a day
      Tegretol Not Working
      Made her seizures worse.
      Topamax Working / Worked
      had great seizure control for a while, then break through seizures prompted an increase and she had a rare side effect, lost vision had to be taken off. Vision restored.
      Trileptal Not Working
      made her irritable and agrrssive
      Vagus nerve stimulation Working / Worked
      Had it implanted on feb of 06.
      Zonegran Working / Worked
      currently on 350mg
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