Journal Entry for October 30, 2007
October 30, 2007 7:35am
Oct 30th
Number 1 Lesson in writng e-journal, do not click any key up the top before saving.
Number 2 Lesson When writng first journal entry …
aseneth’s Profile
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aseneth
is feeling OK
About Me
mum, 3 kids. one with mitochondrial disease. teacher, married, passion has been contemporary dance and music but of late i am just trying to manage my sons disease.
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Journal
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Hugbook
Hug
thanks for the comment i love the support of this site!
Flower
Wishing you a beautiful day!
Hug
Hello, Sorry to hear about your Son and I hope that your ok. I know it's not easy when it affects your family, I'm still waiting to see how much it has affected mine. As for a diagnosis, the test that revealed all was an EMG. Apparently the results were off the scale. It took 5 years for them to test me for Mito. Good luck I will be praying for you.
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Hug
Hugs to you. I totally understand what you go through. God be with you!
Flower
I WISH for u the very BEST ...In all u DO and SAY... And HOPE that LOVE and HAPPINESS always come ure ..........way..........
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Photos
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Support Groups
Close Mitochondrial Diseases
my son Zane is 14 and was diagnosed with Mito last year, he has respiratory chain complex 1. he suffers from epilepsy and psychosis, is in a wheelchair now and basically deteriorating. his brother luke has muscle weakness but mito was ruled out. just so worried and tired.
Close Eczema
I am 39 and have had excema since the age of 14 when it flared up all over my neck and chest. Now I get it on my arms, ears, torso, hands and new places from time to time. I generally find that creams dont help except to cool the skin. My flare ups happen in Spring and Autumn and in Summer when I get too much sun. The humidity is a sure fire trigger. Stress can also trigger it. Its so annoying!!!!
Treatments
Open Caregivers
My son has a degenerative condition, he is 14 years. I am a teacher but am taking leave because of the stress in my everyday life caring for him. He is a beautiful kid who is living a nightmare and I feel a mixture of guilt, helplessness and resentment that I am depended upon for nearly every aspect of his daily needs. I love him and my other 2 kids so much, but it is very hard to have a good day when you are tired, sad and relied on every minute.
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Snapshot
aseneth hasn’t been active on the site in a while. Why not give aseneth a hug?
