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  • Image of AlF801

    About Me

    40 years young, married to Elmo140. 1 son aged 14. I was Diagnosed with Mito July 2007. Hobbies include card- making, (when I can see what I'm doing)and fundraising. We are a Christian family.

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Journal Entry for February 14, 2008

      Mood February 14, 2008 5:38am

      Hi everyone, I was wondering if anyone out there can help. I'm having a muscle biopsy next week and I was warned it is very painful for a while …

    • Journal Entry for December 19, 2007

      Mood December 19, 2007 5:06pm

      Hi everyone, just want to wish you all a Merry Christmas and a peaceful New Year.

      God bless one and all x

    • Journal Entry for November 18, 2007

      Mood November 18, 2007 4:48pm

      Hi everyone,

      Thank you for all your support, its the first time since being diagnosed that I haven't felt quite so lonely. Life has changed so …

    Read Journal

  • Hugbook

    Give AlF801 a hug

    • Prayer

      From Pray2day March 21

      How are you feeling?? I am praying for you.

    • Flower

      From Pray2day March 1

      Praying for you. Hope everything went well with all the testing and muscle biopsy. Was it a frozen sample or fresh? Any results?

    • Hug

      From cjustice25 January 4

      Hope this hug finds you having a good day. Hope you get the answers you are looking for soon. My prayers are with you.

    • Cheers

      From Pray2day January 1

      Happy New Year!! Hope you had a blessed Christmas and great New Years Eve and Day.

    • Present

      From thatwpgguy December 23, 2007

      JUst wishing you and your entire family a very Merry Christmas and a Happy New Year

    Read Hugbook

  • Support Groups

    • Close Mitochondrial Diseases

      I was diagnosed in July 2007 with Mitochondrial disease.

      Treatments

      CoEnzyme Q Working / Worked
      I am currently on 230mg a day. For a little while, I came off them and boy did I notice a difference. It definately helps me.
  • Friends

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