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      From seathesun March 29

      How are you? Hope your having a good weekend

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      From shirls February 9

      Hope your well and have a great weekend love shirlxx

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      From shirls February 2

      Hi hope your well and have a great weekend all my love always shirlxx

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      From shirls January 18

      Had a terrible thunderstorm last night struck satelite dish and phone line which stopped computer all been fixed now ,All the best for you and family for 2008,hope your well all my love shirlxx

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      From shirls January 12

      Hi there hope your well and hve a great weekend love shirlxx

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  • Support Groups

    • Close Epilepsy & Seizures

      My 9 yr old son has been fitting for 2 yrs.The docs have used terms like landau kleffner and benign rolandic with spikes.He has speech problems as a result of the epilepsy .Steroids prednisolone and epilim 500 helped his speech for a while until the steroids stopped. He is now on epilm 500 prednisolone and zonegram(zonisamide)and his voice has gone completely.This occured as soon as he took the zonegram.personality change has also taken place.Can anyone help or advise..thank you

      Treatments

      Clobazam Not Working
      did not work..gave luke bad stomach
      Keppra Not Working
      serious bahavior issues. still no sign of his speach returning.
      Prednisone Somewhat Helpful
      worked well for a little while. his second course had no effect . now taken off them
      Zonegran Not Working
      dreadfull experience with my son on this drug.loss of speach and understanding withinn 12 hrs of starting it..he has been off it for 2 weeks and still no sign of improvement
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