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  • Image of danay

    About Me

    I am a 38 year old single mother, i have alport syndrome and so does my 19 year old son, my daughter is 16 and is not showing signs yet.

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    • Hug

      From Tiggg28 May 2

      Our family has a big history of Alport Syndrome. We send you and your son hugs and prayers

    • Prayer

      From ak17 February 3

      May God bless you and keep you in perfect peace. Here are some encouraging healing bible verses to uplift you. Remember, faith moves mountains and you can get through anything in the name of Jesus. Exodus 23:25 And ye shall serve the LORD your God, and he shall bless thy bread, and thy water; and I will take sickness away from the midst of thee. Psalms 6:2 Have mercy upon me, O LORD; for I am weak: O LORD, heal me; for my bones are vexed. Psalm 103:3-4 Who forgiveth all thine iniquities; who healeth all thy diseases; Who redeemeth thy life from destruction; who crowneth thee with lovingkindness and tender mercies. Isaiah 53:5 But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are healed. Matthew 4:23 And Jesus went about all Galilee, teaching in their synagogues, and preaching the gospel of the kingdom, and healing all manner of sickness and all manner of disease among the people. Jeremiah 17:14 Heal me, O LORD, and I shall be healed; save me, and I shall be saved: for thou art my praise. Matthew 8:14-17 And when Jesus was come into Peter's house, he saw his wife's mother laid, and sick of a fever. And he touched her hand, and the fever left her: and she arose, and ministered unto them. When the even was come, they brought unto him many that were possessed with devils: and he cast out the spirits with his word, and healed all that were sick: That it might be fulfilled which was spoken by Esaias the prophet, saying, Himself took our infirmities, and bare our sicknesses. Exodus 15:26 And said, If thou wilt diligently hearken to the voice of the LORD thy God, and wilt do that which is right in his sight, and wilt give ear to his commandments, and keep all his statutes, I will put none of these diseases upon thee, which I have brought upon the Egyptians: for I am the LORD that healeth thee.

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  • Support Groups

    • Close Hypothyroidism

      My son is 19 years old, he was hospitalized august 20th of this year, he was diagnosed at age 3 with Alport Syndrome and not that he is in stage 3 renal failure he has been diagnosed with (hypothyroidism) although i don't know much about this disorder or heath issue i wouls like to know all there is to know about it, if any of you can give me some advice i would greatly appreciate it.

      Treatments

      Synthroid Too Soon to Tell
      my son sleeps all the time, very hard to wake him.
    • Close Alport Syndrome

      my son is 19 years old with alprt syndrome, hypothyroidism, sickle cell trait, high blood pressure, anger management, i don't know what all to do for him .

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