Med adjustment
June 27, 2008 3:32pm
Here we go again!! I thought I was done with med adjustments--silly me =) I am uppign my Topomax another 25 mg. FUN FUN …
race121’s Profile
-
About Me
I'm a stay at home of one lively 7 year old boy. I live in a small rural town in Nevada, and have been married to my wonderful understanding husband for 10 years. I am going on 2 1/2 years of neurological problems including EP and Chiari. I was decompressed for a Chiari malformation in May 06'. I was diagnosed with complex partial seizures in Dec 06', and at the time was having around 12 per day. The seizures remained intractable--and on march 28th I had grids placed and March 31st a right temporal lobectomy. As of today i am SEIZURE FREE!!
-
Recent Activity
Thursday
-
race121 gave squeaker87 a High Five 1:05am
So hugely proud of you!! What an amazing accomplishment you have achieved despite all you are going through!…
Wednesday
-
race121 replied to jenlbd’s request for advice about I feel so different in the Epilepsy & Seizures support group 7:42pm
This has happened to each one of us. This is a scary and misunderstood diagnosis. You need to tell them…
-
race121 gave kc61 a Hug 7:32pm
I'm back form camping which was interesting and wanted to give out a (((((HUG)))))…
-
race121 gave bigpuppy a Hug 7:30pm
Sounds like you could use a friend that understand the journey you are on. I am sorry you are on this…
-
-
-
Journal
-
-
Day 82 not to be
June 22, 2008 12:51am
I made it 81 days post op seizure free. Today would have been day 82. It was not to be. I had a minor complex partial this evening. I knew …
-
We had fun
June 19, 2008 5:22pm
The trip was fun. Bryan, my 7 year old, thought it was mostly fun. He got bored a few times and that was no fun-the coplaing that insued …
-
Off to the dinosaurs!
June 15, 2008 10:15am
So we are off to take my 7 year old camping to dinosaur national monument for 4 days! Since my husbands schedule allows him 4 days off this …
-
More then rent
June 6, 2008 6:07pm
So my husband and I sat and figured this out. Without the neurosurgeon and anesthesiology bills even here yet-----
For the next several …
-
-
Hugbook
-
Hug
this is nice place it dose what needs be done at time. right now things r totally weird here nd even if wernt its hard to understans things if you arent goin thru them bein able to vent with ppl whom have a clue is nice.
-
Hug
Thank you so so much for your words of wisdom and the support you constantly give me. I can't thank you enough. I hope that your week is going well. Mine is. Guess why?!?! :)
-
Hug
lol thats a goodway to look at it.
Hug
Hey there I am still out here i am sorry I haven't been around as much. I have had alot of health issues going on. And the new doctor is giving me alot more to deal with over the next few months. You can read about it i my latest journal entery. I hope you and your famliy are all doing really well. And I just wanted to let you knoe I haven't forgot about you. Your Frind Traci*HUGS*XOXOXOXO's
-
Hug
thanks it helps to know am not the only 1 i called my wallet and it and that thismoring before mixed up honey and maple syurp i use to get things to flow but harder with word issues thanks it helps to know am not taoally loseing it
-
Photos
race121 hasn’t uploaded any photos yet
-
-
Support Groups
Close Epilepsy & Seizures
In Dec of 06 I was diagnosed with complex partials after going undiagnosed for over 1 year. They remained intractable for another year and I had surgery March 08. I am now seizure free.
Treatments
Close Arnold-Chiari Malformation
I was officially diagnosed with ACM1 in April 06 after it was found "incidentally" in an MRI in Dec of 05 and dismissed by a neurologist. I had decompression with a C1 laminectomy in May 06.
-
Snapshot
Recently …
- 4 hugs given
- 6 hugs received
- 1 discussion reply
- 2 advice replies
- 2 journal comments
