Journal Entry for August 6, 2007
August 6, 2007 6:51pm
Hi everyone, sorry its been so long. Ive been in a lot of pain since I wrote last, and have had good and bad days, like everyone of …
maryrose32’s Profile
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maryrose32
is feeling Bad
About Me
I have Neuropathic Disease, Hypothyroidism, Gerd, COPD, Anxiety, Peptic Ulcer Disease, Chronic Pain, Anemia, Chronic low Potassium, Arrithmia, among others.... for years doctors told me i it was all anxiety and it was all in "my head" Well i guess they were partly right...lol (jerks)
Interests
Hey Health problems limits your real life so join this online 3D world, where you can do anything you can in real life. own a home, get married, have a job, it keeps me sane. Its http://www.secondlife.com you might have to copy and paste into your address browser(basic account is free) If you want to look me up there, my online name is Mary Dana.
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Journal
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Journal Entry for May 12, 2007
May 12, 2007 7:34pm
i am having the worst day ever. the pain is bad and i am just wandering.....
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Journal Entry for May 5, 2007
May 5, 2007 6:30pm
My daog passed away today after 17 years. It it making my MS worse.:(
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Journal Entry for April 1, 2007
April 1, 2007 10:22pm
well sorry i havent written in a while. Have had some bad pain lately, and went to pain management on Friday. They just gave me more Vicadin, and …
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Journal Entry for January 26, 2007
January 26, 2007 8:52pm
I felt ok this morning, and this afternoon i felt dizzy. Now i feel depressed, got some bad news from a family member:(
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Hugbook
Hug
You're welcome. Luv & Hugs, Mari
Flower
Have a beautiful St. Valentine's Day... http://www.youtube.com/watch?v=asy... God's Love
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Hug
Glad you're feeling good today. May you have a beautiful day! Luv and hugs, Mari
Hug
Mary Rose, may I reprint this next Sunday (a week from tomorrow) for my O Sole Mio Sundays column on my blog. If the answer is yes, may I also use your full name and give the name of your state? Also -- one last item -- can I include how long you've had MS? You can see the other related columns at www.sunshineandmoonlight.wordpress... and just click on "O Sole Mio Sundays". My readers (hundreds of them) need to be exposed to your "pledge" here. Know that I'm on board with you completely. Have a Sunshine Day, Kim
Hug
I love what u wrote! I am going to cut and copy this onto a piece of paper and read it out loud everyday. Thank you! Thomas
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MS"MS" is being more referred as a "neuropathic disease" more than ever. Due to the fact that it interferes with nerves, nerves responses, and coating. Nueropathic pain is the most painful thing you can have, since its dealing with your nerves. The pain can feel like burning, tingling, numbing, sharplike stabbing, and electrical "shock" like pain. It is VERY hard to control and the doctors still dont get it. So dont expect them too. They have no clue. Remember that.
Treatments
- Avonex Somewhat Helpful
- threw up and felt weird
- Beta Interferon Working / Worked
- Cymbalta Working / Worked
- Works in low dosages for sever nerve pain. It was originally made for severe depression, but it is a nerve blocking agent. Takes away neuropathic pain. (nerve blocking)I had to stop it because the symptoms were to bad. it made me feel weird, and nervous.
- Lyrica Working / Worked
- I am currently taking Lyrica. It is a nerve blocking agent. It works well with pain management. It does make you feel light headed or dizzy the first week, then it goes away.
- Skelaxin Working / Worked
- works very well for MS pain. To make pain go from a 10 to a 4, try taking Skelaxin, Lyrica and Vicaden at once. This was recommended by my doctor but ask yours first. Its a hard cocktail of drugs, but it beats screaming in pain.
- Xanax Working / Worked
- Works for tremors, and MS anxiety.
Close Hypothyroidism
I was told around 1995 that I was hypothyroid. The medicines still dont raise my TSH, they just raise the amount circulating (T4) and I get dizzy.
Treatments
- Synthroid Working / Worked
- Makes me feel dizzy.
Open COPD & Emphysema
In 2005 I couldnt breathe and was always getting sick. they finally did a Pulmonary function test, which showed I have a bad obstruction of my breathing. (undefined) They immediately put me on meds and it makes the attacks go away for awhile, but I cant be in cold air, do exercise, or I cant breathe. Sometimes I wake up unable to breathe also.
Treatments
- Advair Not Working
- I stopped the advair because it gave me a weird powder feeling stuck in my throat and wouldnt go away.
- Albuterol Working / Worked
- This works great as a fast acting inhaler and in a nebulizer.
- Azmacort Working / Worked
- Vicks VapoRub Working / Worked
- Works if your muscles are sore in your chest from coughing
- Xopenex Not Working
- Doesnt work
- Hydrocodone Working / Worked
- This is a narcotic cough supressent. Works very well for bronchular spasms.
Open Anxiety
I dont think I had anxiety until I developed neuropathic pain. I think it was my "trigger"
Treatments
- Ativan Working / Worked
- I have taken Ativan in the past. it works, but you can grow a tolerance to it immediately. I also feel it doesnt last as long as they say.
- Xanax Working / Worked
- I am on Xanax now. It takes away the anxiety completely and I am on a way lower dose than the Ativan. Great drug with no side effects.
Open Fibromyalgia
I was having pain at the point of pressure. If you touched my arm it felt like you sqeezed it. Also you cant get out of bed.
Treatments
- Cyclobenzaprine Working / Worked
- works very well mixed with a narcotic med.
- Heat Working / Worked
- works very well.
- Lyrica Working / Worked
- Works like a charm. 200mg a day.
Open Chronic Pain
I have constant and chronic pain due to my many health issues. I have tried everything. Some days the pain is so bad I cant get out of bed. I have found some things that work.
Treatments
- Heat Working / Worked
- Place the pad directly on the one spot that hurts the most.
- Hydrocodone Working / Worked
- Take a Vicaden, then use the heating pad.
- Lyrica Working / Worked
- Works wonders for my nerve pain.
- Meditation Not Working
- I just cant seem to get calm enough to meditate.
- Neurontin Not Working
- It just makes you dizzy and you still have pain. lyrica is Much much better.
- Oxycodone Working / Worked
- Percocet works, but can get you addicted fast.
- Skelaxin Working / Worked
- I take this with the Lyrica and the Vicaden. this brings the pain from a 10 to a 5 which is half.
Open Colds & Flu
Last week my fiance was dizzy and throwing up so i took him to Urgent Care. He tested positive for Influenza type A. Two days later I was sick, and still not myself. That monster make me weak, drained and exhausted. My fiance had to have IV fluids.
Treatments
Open Dizziness & Vertigo
I get bad dizzy spells starting around 17 years of age. I have many medical problems that could bring this on, but i get the spells out of the blue, even when I was 17 and on no medication. I get both the type where it feels like your spinning, and the fealing faint.
Treatments
- Antivert Working / Worked
- Meclizine works, but it takes about 5 hours to kick in for me.
Open Back Pain
The back pain started in 2005, and just got progressivly worse. The doctors said I have "narrowing of the formina at multiple levels" These formina are crushing my nerves in my back causing neuropathic pain.
Treatments
- Fentanyl Working / Worked
- It works but you can get addicted and vomit. use only if the pain is severe, this is morphine.
- Flexeril Working / Worked
- This works, can make you dizzy taken with another narcotic.
- Heat Working / Worked
- It works along with a narcotic. lie on it right where the source of the most pain is.
- Hydrocodone Working / Worked
- I have to take this on a daily basis or I cant get out of bed.
- Physical Therapy Not Working
- This made my pain worse!!!!! especially if you have nerve damage!
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