Update
July 31, 2008 6:49pm
I finally went toa pelvic pain specialist and it turns out I have multiple things causing my pain. I have Intersticial Cystitis which basically …
Progress
30 %
samandag’s Profile
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About Me
Be kinder than necessary, for everyone you meet is fighting some kind of battle. Live simply, Love generously, Care deeply, Speak kindly....... Life isn't about waiting for the storm to pass... It's about learning to dance in the rain.
Interests
God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference. Living one day at a time; Enjoying one moment at a time; Accepting hardships as the pathway to peace; Taking, as He did, this sinful world as it is, not as I would have it; Trusting that He will make all things right if I surrender to His Will; That I may be reasonably happy in this life and supremely happy with Him Forever in the next. Amen.
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Recent Activity
August 26
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samandag gave lajeana21 a Hug 12:56pm
I've been having a really crappy time lately. I got in a bad car accident 2 weeks ago and it messed up…
August 23
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samandag gave lajeana21 a Hug 11:49am
I'm so sorry you have to deal with this. If you ever need anything I'm here for you too.…
August 21
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samandag replied to joy1293’s discussion post Endo and no insurance in the Endometriosis support group 1:28pm
I didn't have insurance for 2 years. I ended up moving 17 hours from home to get insurance. I learned…
August 9
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samandag replied to chantelleeeee’s request for advice about sex??? relationships??? in the Interstitial Cystitis (IC) support group 1:45am
Jeanne Could you tell me where to find those sites?…
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samandag replied to Jeanzy’s discussion post pelvic floor therapy in the Interstitial Cystitis (IC) support group 1:44am
I was in therapy until my insurance decided I was done. I really found it very helpful. I was miserable…
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Journal
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Journal Entry for February 18, 2008
February 18, 2008 3:33pm
I'm really depressed today. I'm hurting so bad. I don't think the medicine is doing much. I'm sure when I see the …
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Journal Entry for February 14, 2008
February 14, 2008 1:23am
I'm still struggling, somedays I think I will always struggle. I'm trying to count my blessings. I live where Katrina hit and I …
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Journal Entry for February 2, 2008
February 2, 2008 12:53pm
Yesterday I was feeling really down. I don't know if being sick makes my pain worse or if the meds are one of these it gets worse before it …
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Journal Entry for January 31, 2008
January 31, 2008 12:44pm
I'm trying really hard to stay positive. Having the flu really keeps me from being happy right now, but I'm trying to make the best of …
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Hugbook
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Hug
random hug time
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Hug
Oh my gosh, I´m so sorry for everything that you´ve been through. Are you okay? I hope the car accident didn´t cause too much damage. How is your pain today? Mine is still awful. I haven´t taken pain meds in 3 months but the pain was so intense yesterday that I needed to take one. I don´t know how I´m going to survive 9 months without meds when I try to get pregnant in the near future. Do you have any kids? I hope you have a good day. Thank you for writing. Laura
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Hug
Hi there, How are you doing? Thanks for the hug! How are you feeling today? My bladder has been killing me because I just got my period. It seems like it´s worse during this time of the month. How do you deal with the pain in your bladder-pelvic area? I hope you have a wonderful day! Laura
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Hug
I am very sorry that you are battling this condition. How are you feeling now? I have IC and it sounds like we have the same symptoms. I have never heard of your condition before but maybe I can help you. Please write if you need someone to talk to. Have a good weekend.
Hug
Thank you for the friend request, I do hope you had a good weekend.
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Photos
samandag hasn’t uploaded any photos yet
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Support Groups
Close Endometriosis
I was diagnosed when I was 19 after ending up in the ER once again. I had symptoms from the time I was 13. After several laps and hormone treatments I had a hyster at 21 (uterus and cervix) two months later my pain returned.
Treatments
- Danazol Too Soon to Tell
- Gabapentin Working / Worked
- I've been on it for 2 years and it worked wonders. I went from being unable to move to being able to work. Unfortunately I've adjusted to it and have to find something else.
- Laser Surgery Working / Worked
- Worked for a while, but it always comes back
- Pamelor Somewhat Helpful
- It really seemed to help with my pain, but it caused major depression issues. I quit taking it when I couldn't leave the house.
- Progesterone Not Working
- It wasn't the worst, but I cried all the time.
- Surgery Working / Worked
- It worked temprarily, but the pain always returned.
Close Smoking Addiction & Recovery
My husband and I are trying to stop smoking. We are doing it together.
Treatments
- Cold Turkey Not Working
Open Chronic Pain
I was diagnosed with endometriosis a few years ago and went through all of the treatments offered including a hysterectomy. Nothing eased my pain. Now I am being treated for chronic pain.
Treatments
- Cymbalta Not Working
- It made me very sick so I wasn't able to stay on it
- Heat Working / Worked
- I carry heat patches with me everywhere I go. It really seems to ease the pain.
- Hydrocodone Working / Worked
- I've taken so many of these and they work very well, but I can't live on them.
- Lyrica Considering
- Will probably start next week.
- Marijuana Working / Worked
- Worked well, but unable to continue due to drug testing with my job.
- Neurontin Working / Worked
- Have been on for 2 years and love it, but I have adjusted to it and need something else.
- Oxycodone Working / Worked
- Worked well, but I can't live on pain meds.
Open Depression
Type: Clinical (Major) DepressionI've suffered from depression for years. Some of it has now been attributed to chronic pain that was undiagnosed for many years. I've been hospitalized 4 times. Right now I'm not taking any medication (it affects what I take for endo).
Treatments
- Cymbalta Not Working
- Made me very sick.
- Paxil Working / Worked
- Positive Thinking Working / Worked
- Prozac Working / Worked
- Did not do well with the generic.
- Psychotherapy Working / Worked
- Support from Friends & Family Working / Worked
- Wellbutrin Working / Worked
- Zoloft Working / Worked
Open Female Sexual Issues
I had a hysyterectomy at 21 due to endometriosis. I still have problems with pain, so I'm unable to have sex very often. I still love sex, but am unable to enjoy it as much due to pain.
Open Interstitial Cystitis (IC)
I was recently diagnosed with IC (and a few other things). I've been battling endometriosis for 5 years to find out it's just a small piece of the puzzle.
Treatments
- Atarax Too Soon to Tell
- Baking Soda Somewhat Helpful
- Elavil Too Soon to Tell
- Elmiron Too Soon to Tell
- VESIcare Not Working
- Physical Therapy Working / Worked
- It has been extremely helpful!!
Open Hysterectomy
I had a hyst at 21 for endometriosis. I kept my ovaries because of my age, but now I have to have them removed because I also have PCS.
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Groups
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Snapshot
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