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  From WEDAD November 21, 2007

  Good Morning Gina, I too had the muscle biposy,that showed no results,but the Dr.still thinks its some form of lipid storage disease.I took 3 long months for the results to come back from the lab.Me and my family were driving each other nuts.I would suggest that you see and MDA Dr.(Muscular Distophy Assiocation).They know more about Mito,any they will give you the right cocktail,that really about all they can do for this disease.Try to look on the bright side,things could be worst.I will keep you in my prayers. Love wedad

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  From WEDAD November 15, 2007

  Good Morning Gina, I hope you got some sleep,I have the same problem,once i get to sleep,i wake up within the hour.My legs mostly,because i have restless leg syndrom.Tylenol pm does help and also lunesta,I take one,one day then alternate them.but i feel like iam in the twlight zone all morning,iam really not supose to take anything because of my kidneys.some evenings i will go to the gym and relax in the jacuzzi and steam rm.which seems to also help.I took the alarm clock out of the room,every hour i was looking at it to see how much sleep i have gotten,that really helped.Well let me know about the test results and I will keep praying for you. Take care wedad

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  From WEDAD November 13, 2007

  Hello Gina, Yeah,i know what you mean about the Dr's.Everytime a have a test done,and it comes back postitive,they don't know why! My dr's told me that they don't have the resources to research lipid storage disease.Anyways i have had many cysts on my ovaries,i don't know if there is a connection or not.The one that i had just went away by itself.My thoughts and prayers are with you always. Take care wedad

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  From Pray2day November 6, 2007

  Just letting you know you are in my thoughts and prayers.

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  From paulmitonet November 6, 2007

  We believe, or understand, our condtion is, a nuclear encoded mitochondrial disorder, which in essence, means, myself and rachel, carry part ofthe gene each, within our nuclear genes, which had been carried forward into our children, as a full blown mutation within , both the nuclear and mitochondrial genes, which has meant the Stacey, Kieran and Kristen, have presented, at different ages, at birth, 3 months and 6 months. Myself and Rachel, do not appear to be affected, certainly not at this stage.

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