Journal Entry for October 10, 2007
October 10, 2007 6:27pm
Hi All,
Hope you're all hanging in there.
Sorry I don't have time to check everyone individually right now...still out of town...but I …
lindajane’s Profile
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lindajane
is feeling Good
About Me
I'm a married, retired mother with one adult daughter who is a nurse. I always worked with children, both as a nursery school teacher and running a childcare centre in a private club. Now, it's lazing around in retirement mode until my husband gets to that stage too. I find that I really enjoy communicating with people online now. Maybe it's that laziness thing. You don't have to get all cleaned up and go somewhere to get together with friends! We lost our local epilepsy support group here, so I'd like to try this now. Maybe I can help others out too!
Interests
My husband and I both really enjoy cooking and dining and entertaining- and yes, I DO drink wine, since I've never noticed negative effects from alcohol, or caffeine either for that matter. We also like the theatre, symphony, reading and gardening. Well, the gardening is really only me.I have to say, the internet is a bit of a passion too! Oh, and I love practicing Yoga too.I've been doing it for quite a few years now, and love the fact that every time I go into it, I feel that I've discovered something new about my body and how it connects to my mind It's my favourite type of exercise!
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Journal
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Journal Entry for October 1, 2007
October 1, 2007 4:51pm
Hi everyone,
Just so that you don't think that I've dropped of the earth or something like that, I just wanted to let you know that I'm …
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Hugbook
Hug
Wishing you a safe and happy weekend. Love and hugs, Lorraine :)
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Hug
Sending out a hug to wish you a happy weekend. Love and hugs, Lorraine :)
Hug
Usually I get some kind of funny feeling kinda hard to explain but i know it's coming. then for a minute or two i feel like i can't speak at all. then when i finally can speak the words come out in the wrong order, my speech is slurred and the tone of my voice sounds like a baby talking. then after about a half hour like this i become disoriented and just start rambling and when people talk to me i try to repeat what they said. the problem is this part of it can last from as little as five minutes to days speaking like this. it's been happening more frequently and lasting longer, especially around my period. that's always when i'm the sickest. my job doesn't know how to handle this and i'm on the verge of disability. the greatest relief i get is when some people actually treat me with respect when this is happening and not like a lepper.eventually it subsides and i'm normal again.that and the weakness, joint pains, just feeling like crap. my fiancee left over this. my life has been turned upside down. the only people who really understand are my mother and my oldest son. i even went to a psychiatrist because i thought i was losing my mind. he agreed it was a seizure disorder and not psychiatric and upped my meds, which by the way hasn't been helping. i have an appointment with a neurologist next week, but i expect to hear the same things. nothing wrong, seizures, blah, blah ,blah. at this point i am very bitter. i really appreciate you taking the time to listen.
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Hug
Didn't see our local parade, but I was up at the mall so saw lots of little kids going off to visit Santa. Love and hugs, Lorraine :)
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Hug
ty
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Photos
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Support Groups
Close Epilepsy & Seizures
I started seizuring at 19 and have never been totally controlled in spite of having been on every medication ever available in Canada.This past year I spent a total of seven weeks in hospital undergoing tests (including sub-dural implants)to see if I would be a candidate for surgery, but in the end nothing along that line could be done.The epileptologists I have dealt with have told me that I am one of the most puzzling cases ever.My life is good,but it always helps to compare notes.
Treatments
- Clobazam Too Soon to Tell
- Recently added as an adjunct. Fatigue the only noticeable side effect, but is improving. Seems to be helping a bit, but I keep hearing that it tends to give you a three month "honeymoon" and then starts to lose its effectiveness.I'll have to see.
- Depakote Not Working
- no noticeable effects
- Dilantin Not Working
- on for a long time when first diagnosed, then again for the past couple of years. Did'nt seem to work
- Keppra Working / Worked
- Second go-round on this. Works pretty well, but my white blood cell count dropped very badly and the drug was blamed.Doctors now think it may be one of my other drugs causing the problem.Final verdict is'nt in
- Lamictal Considering
- could not say that it had any effect, but is now a suspect for my white cell count issues
- Mysoline Not Working
- nothing in particular
- Neurontin Working / Worked
- Phenobarbital Not Working
- Was on it for a long time in my youth. At first (age 12) for hyperthyroidism, then later as an anticonvulsant. Was taken off for a few years since my seizures were'nt cotrolled.Went back on it very briefly last fall, but had a very bad reaction...EXTREMELY stoned...so I had to come off of it very quickly.
- Tegretol Not Working
- Again, I was on this for many years. Never stopped my seizures. Was taken off recently to see if it might be the reason for the white blood cell problems.Coming off did'nt cause any problems,but cell count did'nt improve
- Topamax Not Working
- Very bad reaction. Was on it for less than 48 hrs. Sent me into constant seizures. Was hospitalized for a week as a result.
- Trileptal Not Working
- Nothing noticeable
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Snapshot
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