Journal Entry for September 11, 2007
September 11, 2007 6:22pm
Too pretty to be sick???!!!! I'm writing that because after correspondence with people-including Dr.'s who have told me that-it keeps …
lesliechick’s Profile
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lesliechick
is feeling OK
About Me
I have three beautiful children, all boys, ages 11, 9, and one who just turned 5.I have been married for almost 7 years to a man who is the greatest dad on the planet!!He's raised my oldest 2 boys since they were only 1 1/2and 3 1/2 years old.He even won a volunteer of the year award at their school one year!Unfortunately, due to a neglectful physician, a metabollic disease that was treatable went undiagnosed for a long time causing me to go into multi-system failure.Instead of spending my time working, spending time with friends and family, going to my sons' ballgames, ect. like I use to, I now spend most of my time in hospitals or at one of my specialists.Even when I'm lucky enough to be out of the hospital, I still have to go and have I.V. infusions.In the middle of all this is when fibro and reactive arthritis started kicking me right in the rear!!This has been the hardest year of my life!There are days I wouldn't have made it without you guys!!!
Interests
Well right now I'll have to use past tense:going to movies, shopping, working(I loved what I did so to me it was a hobby as well), spending time with friends and family, playing with my kids, traveling, going to my childrens' activities whether it be at school or a ballgame, dancing, singing.Of course these are not in order.
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Journal
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Journal Entry for September 11, 2007
September 11, 2007 9:17am
Wow what a difference!!!I got put on provigil yesterday-I don't know how long it will last but compared to usually-I FEEL GREAT!!!!My doctor has …
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Journal Entry for September 9, 2007
September 9, 2007 1:48pm
Thank you guys for not being down on me for complaining.Today all my joints are swollen.I'm at my witts end.I'm too weak to even go to all my …
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Journal Entry for September 8, 2007
September 8, 2007 1:47pm
This week has been extra bad pain wise.The bad thing is my husband has to go out of town next week.I'll be here alone with all 3 kids.I can …
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Hugbook
Hug
Hug
Hi, just wanted to say hi. I have not heard from you in a while. How are things with you? Did you ever start back to work? I did at Sally Beauty Supply. I will be giving a notice tomorrow because my feet and legs are just killing me. It is also to much stress. No manager since Nov. just the Distric Manager. I have had enough. I will be trying a job sitting calling business and doing surveys. Just feel I need to get out and do something. Well take care... Love ya Kim
Hug
I hope you are doing well my friend. I miss you. Love Cris
Flower
These flowers are for you! Thank you for your kind words and advice.
Hug
How are you doing chickie??? Just stopping in with a great big hug for you. Hope you have a great one. It is poring the rain here. Sounds beautiful:)
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Support Groups
Close Fibromyalgia
I started staying sick alot-I was diagnosed with adrenal insuff.However it didn't stop there.I became anemic,I lost 2 inches of height,developed spinal stenosis,spondylosis,kyphosis,herniated discs,swollen joints,myoclonus,nueropathy,but the worst part is that is when fibro myalgia started kicking my butt!!!
Treatments
- Adderall Working / Worked
- it worked with fatigue and brain fog-but my dr.'s thought it was causing the other problems so they stopped it-it wasn't causing them
- Cyclobenzaprine Not Working
- just made me more tired
- Cymbalta Working / Worked
- didn't think it was helping untill I stopped it
- Duragesic Patch Working / Worked
- worked but I got use to it
- Heat Somewhat Helpful
- helps with the muscle knots
- Lyrica Too Soon to Tell
- Morphine Working / Worked
- I'm on oxycotin and still suffering every day-I tried Avinza it worked but rendered me unconscious
- Neurontin Not Working
- don't do it -gave me a seizure
- TENS Somewhat Helpful
- relaxs the muscles
- Ultram Not Working
- did nothing
- Zanaflex Working / Worked
- helps to take at bedtime
Close Chronic Pain
November 2004 I fell down a few flight of stairs.I broke my tailbone and sacrum-and didn't stay off work like I should.A year and a half later it started hurting and it progressed to where all my spine was hurting.I had lost 2 inches of height developed spinal stenosis,osteophytes,kyphosis,several herniated discs.Then I started hurting everywhere-went into adrenal failure,started having myoclonus,became anemic-and it just keeps getting worse.
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Snapshot
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