cindyhat's Journal

Journal Entry for March 14, 2008 Mood

Friday, March 14, 2008 | A Painful story

WELL THE DOCOTRS JUST FOUND OUT WHICH DISAESE MY DAUGHTER HAS. THEY WASN'T SURE FOR AWHILE. CHEYENNE HAS {- MITOCHONDRIAL ENCEPHALOPATHY LACTIC ACIDOSIS STROKE LIKE EPISOD- } THEY ALSO TOLD ME AND MY HUSBAND THAT OUR DAUGHTER DOSEN'T HAVE ALOT OF TIME LEFT. THEY ARE GIVING HER ONLY 6 MONTHS TO A YEAR TO LIVE. I CAN'T HANDLE THIS IM GOING CRAZY,IM SO AFRIAD. MY DAUGHTER IS ON A BIPAP AT NIGHT FOR 12 HOURS SO SHE CAN BREATH, HER LUNGS ARE BAD, THE DOCTORS SAID SHE IS ALWAYS GOING TO NEED OXYEN THE REST OF HER LIFE. THEY ALSO SAID SHE MAY NEVER DO THE THINGS THE OTHER KIDS DO, EVEN IF SHE LIVE MORE THEN A YEAR. IF SOMEONE CAN LEAND A HELPING HAND OR A EAR IT WOULD HELP ME ALOT. CYNTHIA

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Comments

I cannot even imagine what you are going through, my thoughts and prayers are with You, You're family, and you're Little Angel ! If you need an ear to vent too, I will be more than happy to hear you out. Godbless you all, you are a very heroic Mommy. Again my Prayers are with you.
Katie Mac.

KatieMac81
I am so very sorry for what you and your family are going through. There is power in prayer and I will pray for your little girl and strength for your family. I am very new to this disease as my daughter has just been diagnosed but I am willing to help in any way I can.

ChandlersMom