I am a 31 year old female with NF1. My son is 2 and a half and has it too. Mine has been pretty mild for a long time with most bumps that can only be seen in certain light but it still gets to me.
igloogirl and GypsyQueen are now friends 10:22am
igloogirl replied to ponyrider’s discussion post just dont understand in the Neurofibromatosis support group 6:18am
I believe there are different MRIs that can get higher resolutions if they need to look at something…
igloogirl replied to Oscargal78’s discussion post I joined this group because... in the Neurofibromatosis support group 6:15am
NF comes in a lot of forms from mild to extreme, and since I have been mild, I rarely go and see a doctor…
igloogirl replied to mazel’s discussion post dealing with nf alone in the Neurofibromatosis support group 8:50pm
I tend to put mine on the back burner because it really does not effect my life that much. So I have…
igloogirl replied to Koogla’s discussion post Maintenance in the Neurofibromatosis support group 8:53pm
I tell people I have the condition, but most are quite unfazed and could care less. You really can not…
January 20, 2008 9:18pm
My friend from Vancouver has come to visit and my oh my has it been a fantastic voyage.
My friend has been around the world, comepeted in …
December 30, 2007 7:29pm
Ahhh, there is a new year upon us. A time to make changes that will make us better, stronger, happier and healthier.
I want to make myself …
December 16, 2007 8:19am
I have realized that I spend too much time worrying about NF.
I wish that I did not have it, but I do. My life is not worse off because of it, …
November 12, 2007 2:37pm
Freedom.
One word that can mean the difference between light and darkness.
I have decided to, ok have to, move out of my aunt's house because she …
October 14, 2007 8:09am
Ok so here it goes.
Lately maybe it is me finally being optimistic, but it seems sometimes that the NF really isn't so bad. Most people who …
you moved to Canada????? are you there now? Thats cool. I wish you luck. How are you liking it so far.
Hi.. Miss talking to you. I will be be in NY for a day for consultation. I wont be ablet o meet up with anybody but when I come back for sugery, maybe I can...
Hey. Where are uuuuuuu????? I have been trying to contact u but it seems as if u disappeared of the face of the earth. Did aliens kidnap u and take u to a planet with only gorgeous single men who are trying to kidnap female earthlings to bring to their homeland.....
I miss you girlie.. long time not talk......
Hey.. What happened to you... Did u move yet????? I miss chatting with uuuuu.. How's the little man????
I have NF1 as does my son who is 2.5 years old. I guess you can say mine is pretty mild, but i have a lot of little bumps that can be seen under certain light which for some reason i have begun to OBSESS about. My friends think i am crazy for being so self conscious, and i hope it stays coverable (if thats a word)
My son is 2 and a half and has been diagnosed with Sensory Integration Disorder. He has come a very long way but gets frustrated very easily and the daycare is almost at their wit's end and we may have to switch. He is a darling wonderful boy who just needs that extra help.
My son is quite energetic and seems to either focus only on one thing or nothing at all. He has not been fully diagnosed with ADD, but I may get him tested when he is older.
My divorce became final New Year's Eve of 2006. My ex husband decided to cheat on me as I was about to give birth to our son. He decided to make it quite obvious, but we lived in the same house for almost a year as the marriage fell apart. I have not had a solid relationship since, but would love to find that right person to accept me as I am and my adorable little boy. I moved away for a bit from him but will be going back to the same town shortly.
I lost my mom two years ago this October 8th to lung cancer. I miss her every day and miss her being able to be the grandmother she had wanted to be. Luckily she got to meet her grandson.
Used to work out and diet like a fiend and now after the birth of my son, my mom's death, moving, a divorce, and a full time sedentary job i have put on a little and have not been able to hit the gym at all. I go for walks with my son, but i joined WW but have trouble with sticking on a plan. Help!
Like the rest of the universe I like having sex... especially when it is good. Learning how to be in a relationship again after a bad ending to my marriage
Finally learned how to save a bit of money. Still love to spend though...
My mom died in October 2005 as my marriage fell apart. My aunt by marriage accepted my mom's wish to have me live in her house to get away from my ex and start over. She judges me for everything even though I know she loves me some things that she has said and done really break my heart because I am not what she thinks I am.
I tend to get anxious about the little things. I worry that people are constantly judging me even when they aren't and I make unrealistic expectations of myself. I get told all the time that I am pretty, smart, and cool but I really do not believe anyone. I have ruined many friendships because I tend to cut people off when they get too close. Or I become too attached and feel I can lose them in an instant.
I divorced my ex and moved from Toronto to Long Island. My ex makes minimal efforts to see or speak to his son. He did not send a Christmas or birthday card last year and I doubt one is coming this year. Have legal papers that state I have full sole custody but he wants me to move back so he can be involved....
Have not really had a solid relationship since my moving away from my now ex husband two years ago. Want to find that special someone to really work on a relationship with and grow with. Have some trust issues, but nothing severe
I tend to do too much for people and accept them still when they take advantage of me. I yearn too much for attention that I already get.
My son turns 3 next Friday. Love getting new ideas from other parents
diagnosed with a low strain apparently that does not cause abnormal pap or cancer but still worried
I absolutely love working out. Was in training for natural bodybuilding in 2003-2004 but got pregnant with my son instead of competing... Used to work out 3-6 hours a day and now I am a weekend warrior.
