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kc61's Profile

Feeling: Good  - Good
Gender: Female
Age: 46
Location: NY
Interests:
(**3/25/08 I am selective about new friends, I may NOT accept an invitation**) Motorcycle rides with my husband; nature; cooking; the History, Discovery & National Geographic Channels (lol); having deep conversations with & getting hugs from my 19 year old daughter; gardening; sunsets on the ridge right behind our house; helping my husband renovate our house; playing chess; cats. Oh yeah and Star Trek. AND, Jeopardy!
About Me:
(**3/25/08 I am selective about new friends, I may NOT accept an invitation**) 8/28/07 stay at home wife 9/1/07 wow. I guess I was shy when I first signed up... I'm happily married & it gives me great joy to take care of and love my husband, my daughter, our two black cats, Rumpy & Mon Amie, our(humble)home and flower gardens. My first 2 seizures were in July 2006, and both GM's. The first one had convulsions so violent that I broke a bone in my spine, a compression fracture at T7. Doctors took 6 weeks to believe me that something was wrong with my spine. Talk about pain... I am fortunate to have all of you to share experiences with. It is a comfort to know that I am not the only one going through difficulties in life. I am glad to be making new friends!

Recent Activity

 
Friday, May. 16
kc61 hugged Karen99, fichai3968, Karen99, and 2 other members 9:51am
\/ More Activity


  • Hug

    race121 (2:28 pm)

    You just need a big ((((((((((((((((hug))))))))))))))))


  • Hug

    remembertheleaves (11:19 pm)

    I'm sending you hugs full of roses and lilacs.


  • Flower

    Aust (7:52 pm)

    Hope all is well. Hugs

Support Groups

 Epilepsy & Seizures
7/28/06 age 44 sudden traumatic onset of epilepsy changed my life. For the first 6 weeks no doctors believed me that my spine hurt. They all told me it was pulled muscles. Finally an xray showed a compression fracture at T7. It has been a long road of 2 primary care physicians & 4 neurologists to find my way here. My diagnosis is Catamenial Epilepsy, and lucky me, I can walk. 
Treatments
 Depakote (Not Working)
breaktrough seizures and eventually side effects
 Dilantin (Not Working)
breaktrough seizures and eventually side effects
 Keppra (Not Working)
dose too high, too many side effects
 Lamictal (Working / Worked)
Just started, no results yet
 Neurontin (Not Working)
breakthough seizures and eventually side effects
 Topamax (Not Working)
allergic
 Trileptal (Somewhat Helpful)
taking now, having breakthrough seizures, the higher the dose goes, the more migranes i get
8 Members 2 Posts


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