Group News

For a woman using Modafinil what contraceptive options are suitable?

I found the answer to this question here:

http://www.fsrh.org/admin/uploads/No.2421.pdf

Petitions:

To formally recognise Narcolepsy as a disability

To provide free prescriptions for narcolepsy and cataplexy sufferers

The Disability Discrimination Act defines a disabled person as "someone who has a physical or mental impairment that has a substantial and long-term adverse effect on his or her ability to carry out normal day-to-day activities."

Narcolepsy is a physical impairment that has a substantial effect on a sufferer's ability to carry out normal day-to-day activities. Narcolepsy is deemed acceptable grounds for exemption from jury service. Disclosure of the condition to the DVLA is mandatory for narcoleptic drivers.

Yet narcolepsy is not recognised as a disability. This means the 'Two Tick' scheme, introduced to discourage discrimination against disabled people in recruitment, does not apply to narcoleptics, and means they face extreme difficulty in trying to access Disability Living Allowance despite the need for specialist care (e.g. needing someone present when cooking in case the sufferer falls asleep and starts a fire).

The purpose of this petition is to implore the government to recognise this debilitating condition as a disability.

Sign here please: http://petitions.number10.gov.uk/narcolepsy/

Narcolepsy and Cataplexy are incurable conditions which are inter-linked. They cause problems for the sufferers due to the spontaneity of the condition and the severity of it, causing any situation to become dangerous.

Cataplexy is, in brief, a condition in which heightened emotions cause muscles to weaken, making the sufferer collapse, which can potentially and almost always be life-threatening.

Narcolepsy, in brief, is a condition in which the sufferer sleeps excessively and experiences hallucinations and sleep paralysis on a daily basis.

This can be distressing and painful for everyone involved and so medication to control the conditions is essential in most cases. This medication can drastically change a life and allow sufferers like me to work and live almost as normal.

Sign here please: http://www.gopetition.com/online/21073.html

Thanks to andrewf444 and cally9 for providing these links in the discussions. I decided to put them both together here so they can be easily found at the same time. Please sign them both asap, and encourage your friends and family to sign too - I'm sure they are just as keen to help us.

http://www.dwp.gov.uk/medical/med_conditions/disability_handbook.asp 

For your reference