Discussion Topic

NTK

HIGHER DOSE

Posted on 07/24/08, 08:58 am

HEY QUESTION 4 U ALL. JUST WANT 2 KNW JUST HOW MANY OF U GUYS R TAKING THE 4.5MG OF LDN N HOW THAT IS WORKING 4 U..

Showing 1 - 10 of 13 Replies

Reply #1 07/24/08 10:33am

DellaJeanne

I am starting it when I get my new prescription. I'll let you know in a week or so.
Reply #2 07/24/08 12:26pm

Nellynumb

Still on 3mg, seems to be ok, so I dont think Ill move up, I dont want to rock the boat :-) Dr bihari recommends 3mg for ms folks so I may stay at that at least for now. :-)
Reply #3 07/24/08 2:58pm

LarryLDN

I tried 4.5 for 38 days in 2004 and then 12 more later in the year. 3.0 for me.
My Dad and Bro are on 4.5, but not for MS.
Reply #4 07/24/08 5:17pm

golferguy

I take 4.5 to 5 mg nightly and no new lesions! If I take more than 5 I get a hangover effect . If I drink on LDn my eyes turn red... I believe it is helping me.
Reply #5 07/24/08 5:48pm

DellaJeanne

Golfer, are you having spastic legs with the higher dose?
Reply #6 07/24/08 5:49pm

DellaJeanne

I'm asking because that has been a problem for me and I probably won't stay with the higher dose if it does.
Reply #7 07/24/08 7:41pm

mitt

I started at 3 for a month but then moved up to 4.5 for 8 months and did fine. then recently I started a really bad period with worsening of existing symptoms so now I am going back to 3 to see if that helps. right now I am waiting for the new prescription to be sent so I am taking some 8 month old pills. I've heard that ldn only lasts for 6 months so I don't know if it's potent, but hopefully I'll get the new batch tomorrow and I'll let you know if it helps. I hadn't heard that 3 is best for MS. where did you guys hear that? I was led to believe that 4.5 is best if you can handle it.
Reply #8 07/24/08 7:55pm

DellaJeanne

I went back to the LDN home page--not on DS--and it says if your MS led to muscle spasms you should stay with 3.0. Otherwise, 4.5 is the top amount. At 5.0 too much endorphin was blocked. I am a little worried about going t o 4.5 since I have some leg stiffness still. I may try it a few days, or I may not do it at all. My neuro gave me the 1.5 capsules with enough to take 2 or 3 caps.
Reply #9 07/25/08 8:46am

NTK

SAW MY DOCTOR YESTERDAY N HE SAID 4 ME 2 STAY AT 3MG. 4.5 WILL NOT HELP WITH ALL THE INFLAMATION I AM HAVING. WE HAVE DECIDE 2 DO THE INFUSIONS 1 DOSE A MONTH 2 STAY AHEAD OF THE INFLAMATION INSTEAD OF GETTING 3 DAYS EVERY 3 2 4 MONTHS.
Reply #10 07/25/08 7:31pm

Nellynumb

Mitt Dr Bihari is the doctor that recommends 3mg for ms patients,he did reasearch with numurous patients on it, and found they all reacted better on the 3mg, Larry can enlighten you more on this and probably give you a website to read. :-)