Discussion Topic
List of Helpful Organizations
Posted on 06/18/08, 02:15 pm
Example
Accelerated Cure Project for MS is collecting blood samples from those with MS. It is completely anonymous so you can NOT get your blood results ) :
However, you can get access to a newsletter they put out. It has fund raising info but it will also tell you who asked for blood work (ie MIT). So you can follow-up with what is happening in their research.
YOU GET $25 for participating. If you are interested and live in one of the following areas call Sarah @ 781-487-0099 for more info:
1. Atlanta, Georgia
2. New York, NY
3. Phoenix, Arizona
4. Dallas, TX
5. Columbus, OH
6. Denver, CO
7. Baltimore, Maryland
8. Westchester, Massachusetts
Accelerated Cure Project for MS is collecting blood samples from those with MS. It is completely anonymous so you can NOT get your blood results ) :
However, you can get access to a newsletter they put out. It has fund raising info but it will also tell you who asked for blood work (ie MIT). So you can follow-up with what is happening in their research.
YOU GET $25 for participating. If you are interested and live in one of the following areas call Sarah @ 781-487-0099 for more info:
1. Atlanta, Georgia
2. New York, NY
3. Phoenix, Arizona
4. Dallas, TX
5. Columbus, OH
6. Denver, CO
7. Baltimore, Maryland
8. Westchester, Massachusetts
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Reply #1 06/18/08 2:16pm
Clearinghouse on Disability Information
Special Education & Rehabilitative Services Communications & Customer Service Team
550 12th Street, SW, Rm. 5133
Washington, DC 20202-2550
http://www.ed.gov/about/offices/li...
Tel: 202-245-7307 202-205-5637 (TTD)
Fax: 292024507636
Multiple Sclerosis Association of America
706 Haddonfield Road
Cherry Hill, NJ 08002
webmaster@msaa.com
www.msassociation.org
Tel: 856-488-4500 800-532-7667
Fax: 856-661-9797
National Rehabilitation Information Center (NARIC)
4200 Forbes Boulevard
Suite 202
Lanham, MD 20706-4829
naricinfo@heitechservices.com
http://www.naric.com
Tel: 301-459-5900/301-459-5984 (TTY) 800-346-2742
Fax: 301-562-2401
National Multiple Sclerosis Society
733 Third Avenue, 6th Floor, New York, NY 10017-3288
nat@nmss.org
http://www.nationalmssociety.org
Tel: 212-986-3240 800-344-4867 (FIGHTMS)
Fax: 212-986-7981
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
International Essential Tremor Foundation
P.O. Box 14005
Lenexa, KS 66285-4005
staff@essentialtremor.org
http://www.essentialtremor.org
Tel: 913-341-3880 888-387-3667
Fax: 913-341-1296
Multiple Sclerosis Foundation
6350 North Andrews Avenue
Ft. Lauderdale, FL 33309-2130
support@msfocus.org
http://www.msfocus.org
Tel: 954-776-6805 888-MSFOCUS (673-6287)
Fax: 954-351-0630
National Ataxia Foundation (NAF)
2600 Fernbrook Lane North
Suite 119
Minneapolis, MN 55447-4752
naf@ataxia.org
http://www.ataxia.org
Tel: 763-553-0020
Fax: 763-553-0167
American Autoimmune Related Diseases Association
22100 Gratiot Avenue
Eastpointe
East Detroit, MI 48201-2227
aarda@aarda.org
http://www.aarda.org
Tel: 586-776-3900 800-598-4668
Fax: 586-776-3903
Well Spouse Association
63 West Main Street
Suite H
Freehold, NJ 07728
info@wellspouse.org
http://www.wellspouse.org
Tel: 800-838-0879 732-577-8899
Fax: 732-577-8644
Accelerated Cure Project for Multiple Sclerosis
300 Fifth Avenue
Waltham, MA 02451
info@acceleratedcure.org
http://www.acceleratedcure.org
Tel: 781-487-0008
Fax: 781-487-0009
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Reply #2 06/18/08 11:01pm
Welcome
Join This Group
This group is for MSers who choose not to take any of the medical therapies. If you are trying to find a natural way to handle your ms this could be an encouragement.
