amymarie's Journal - DailyStrength Keep a personal wellness journal on DailyStrength to track your health and communicate with friends. http://dailystrength.org/people/85050/journal Sun, 20 Jul 2008 19:37:30 +0100 DailyStrength RSS 0.11.3.0.6833 (FeedCreator 1.7.2) http://dailystrength.org/images/comprofiler/avatar/85050/1213266810.jpg amymarie's Avatar http://dailystrength.org/people/85050 amymarie's entry on 06/28/2008 09:24 http://dailystrength.org/people/85050/journal/1154425 Well had all those tests done.  MRI of Brain and neck was the same as the one I had in Feb.  The T spine did show arthritis.   EEG was normal and never heard anything back about the blood tests.    My nephew David made it through surgery and now has the feeding tub... Sat, 28 Jun 2008 21:24:27 +0100 amymarie's entry on 06/02/2008 02:31 http://dailystrength.org/people/85050/journal/1094509 Its back to Knoxville on Friday for more tests on me.    I have to have another MRI, Brain, C-spine and t-spine.  Plus blood work, EEG, EKG etc.   I really don't want to go and have tests done again.   It probably won't show anything new.   M... Mon, 02 Jun 2008 14:31:29 +0100 amymarie's entry on 06/02/2008 02:17 http://dailystrength.org/people/85050/journal/1094487 David is still in the hospital.   He has pnuemonia and is on oxygen.   His kidneys are still not working good.   We thought he was getting better but then he gets pnuemonia.   He hasn't had any seizures which is good.   Last time he had surgery h... Mon, 02 Jun 2008 14:17:42 +0100 amymarie's entry on 05/30/2008 03:02 http://dailystrength.org/people/85050/journal/1088506 David is still in ICU.   His kidneys are not working like they should.   He has a lot of fluid build up and blood cell counts are low.    So he is still having a hard time.   My sister hasn't hardly slept at all since the surgery.   She will... Fri, 30 May 2008 15:02:21 +0100 amymarie's entry on 05/28/2008 06:51 http://dailystrength.org/people/85050/journal/1084232 My nephew went to knoxville to have the feeding tube put in.   They had to put it  into his small intestine.  This is because of acid refux that could cause him to asperate fluids etc. back up into his lungs if they put it into his stomach.   They did the surgery today.... Wed, 28 May 2008 18:51:01 +0100 amymarie's entry on 05/12/2008 04:14 http://dailystrength.org/people/85050/journal/1046948 Well the new tests have been scheduled for June 6th.  Back to Knoxville again.   I'll be having another MRI, ekg, eeg, 2hr sugar test and blood tests.   I have to be at the hospital for 7 hours that day doing these tests.  Mom isn't thrilled about having to driv... Mon, 12 May 2008 16:14:12 +0100 amymarie's entry on 05/11/2008 06:56 http://dailystrength.org/people/85050/journal/1044823 I got a copy of my MRI report that I had done in Feb.  of this year.    I asked the neurologist for a copy. Here is what is says: Multiple rounded oval regions of increased signal intensity are seen on the T2 Flair propeller images frontal and parietal lobes worse on the fro... Sun, 11 May 2008 18:56:04 +0100 amymarie's entry on 05/11/2008 06:16 http://dailystrength.org/people/85050/journal/1044752 I went neurologist and she thinks the eye blinking problem could be MS.  But the swelling around the rib cage she is not sure of.   She said that the she hasn't heard of copaxone causing this kind of swelling.  So I'm to continue the copaxone.  She is going to schedu... Sun, 11 May 2008 18:16:25 +0100 amymarie's entry on 05/08/2008 06:44 http://dailystrength.org/people/85050/journal/1038488 I'm going back to the Neurologist Friday becasue I'm still having problems with swelling around rib cage area and pain.   MS Hug?????  Or Copaxone????   Also having problems with my eyes blinking uncontrollably.  It comes and gos but when it happens its such a p... Thu, 08 May 2008 18:44:00 +0100 amymarie's entry on 04/24/2008 01:38 http://dailystrength.org/people/85050/journal/1004123 I went back to OB GYN today and got my results from the second ultra sound.   My cysts are gone except one but its nothing to worry about.  So finally some good news.     As for an update on my Nephew he still has the feeding tube down his nose.  My sister too... Thu, 24 Apr 2008 13:38:08 +0100 amymarie's entry on 04/15/2008 08:19 http://dailystrength.org/people/85050/journal/981925 Well I've gone from the MS Hug or what ever it was to my right leg.   My right leg swelled up it was larger than my left leg.  The back of my leg from knee joint up was sticken out.  Was hard to bend my knee.  Didn't hurt that much well a little.  But today my c... Tue, 15 Apr 2008 20:19:46 +0100 amymarie's entry on 04/12/2008 02:53 http://dailystrength.org/people/85050/journal/973499 I think I had the "MS Hug" last night.   My ribs cage area and my back hurt so bad last night.  I was really considering going to ER.   I took a zanaflex and it help a little.  I was trying to stretch to get relief and everything.  It was awefull.... Sat, 12 Apr 2008 14:53:49 +0100 amymarie's entry on 04/10/2008 10:03 http://dailystrength.org/people/85050/journal/969313 Copaxone shots not going well.   Missing a lot of shots.  I'm just not able to give the injections in my hips and the back of my arms.   Mom does not want to help me with this.   I don't want her to either.  So its only leaving me with my legs and stom... Thu, 10 Apr 2008 22:03:52 +0100 amymarie's entry on 04/10/2008 09:56 http://dailystrength.org/people/85050/journal/969286 My cold/flu is gone but spring time allergies have set in.  Sneezing all the time.  Truck is still broke and I don't have the money to fix it.   I don't drive much anyway but I do need it. Have to drive at times and need it for emergencies.   I hate the tho... Thu, 10 Apr 2008 21:56:09 +0100 amymarie's entry on 04/10/2008 09:29 http://dailystrength.org/people/85050/journal/969209 My nephew is going home tomorrow.  But he is going home with the feeding tube still in his nose.  My sister is taking him to knoxville on Monday to the doctors there.  He will have to have surgery to put the feeding tube into his stomach.   Platelet counts are doing good now... Thu, 10 Apr 2008 21:29:06 +0100 amymarie's entry on 04/07/2008 08:25 http://dailystrength.org/people/85050/journal/960265 My nephew has improved a little bit.  His platlet count is almost normal.  No change with swallowing etc.  Still sleeping most of the time and very weak.   No change with pnuemonia.  He a lot of swelling on the left side of his body the same side that is being affected ... Mon, 07 Apr 2008 20:25:25 +0100 amymarie's entry on 04/05/2008 10:59 http://dailystrength.org/people/85050/journal/954165 My nephew is not improving.  The doctors say that parts of his brain is sleeping even though he is awake.   Basically his brain is not telling him to urinate.  Its not a problem with kidneys or anything.  He has a catherter in.  Same thing with being able to swallow his... Sat, 05 Apr 2008 10:59:49 +0100 amymarie's entry on 04/03/2008 11:30 http://dailystrength.org/people/85050/journal/950967 My nephew David is back in the hospital.  He is very sick.  Has severely low platelet count, can't eat.  Needs a feeding tube but can't put one in because of risk of bleeding out, and has pneumonia.  He is sleeping all the time, had to be cathereized because he ... Thu, 03 Apr 2008 23:30:21 +0100 amymarie's entry on 03/24/2008 10:22 http://dailystrength.org/people/85050/journal/924341 I thought I was getting better.  But looks like I'm getting this cold/flu thing all over again. Mon, 24 Mar 2008 22:22:50 +0100 amymarie's entry on 03/21/2008 01:47 http://dailystrength.org/people/85050/journal/916308 Starting to feel a little better.  Still have a cough that just won't go away but for the most part feeling better.  Going to a cook out at my mom's house for Easter Sunday.    Hope it gets a little warmer for the cook out but not to warm.    Had my se... Fri, 21 Mar 2008 13:47:27 +0100