Keep a personal wellness journal on DailyStrength to track your health and communicate with friends. http://dailystrength.org/people/150699/journal Thu, 21 Aug 2008 03:35:06 +0100 DailyStrength RSS 0.11.3.0.6833 (FeedCreator 1.7.2) http://dailystrength.org/images/comprofiler/avatar/150699/1213247023.jpg http://dailystrength.org/people/150699 http://dailystrength.org/people/150699/journal/1252837 Maybe I should see a neurologist to see if the constant pain weakness and fatigue is due to the long term effects of the chemo. It seems that any attempt to gain stength seems to fail.  Maybe their is a reason for it. But I hate to have more tests.   Mon, 18 Aug 2008 22:48:35 +0100 http://dailystrength.org/people/150699/journal/1252763 Very exhausting day.  Probably should rest but just feel totally defeated. Usually the chrio does not give up on me.  But I sort of got the feeling that he is going to push me off to somebody else if this does not get solved soon. Got an email from a friend and she really enjoyed... Mon, 18 Aug 2008 22:06:22 +0100 http://dailystrength.org/people/150699/journal/1252708 Had a rough time with pt today.  More trouble with standing on one foot.  Balance has always been an issue.  Doing squats hurt my back a lot. The chrio said if the wrist issues are not resolved with new measures he might need to send me to somebody else.  A hand specialist I... Mon, 18 Aug 2008 21:31:27 +0100 http://dailystrength.org/people/150699/journal/1250901 Not wanting to go to water pt tomorrow.  I am worried that being in so much pain that I will suck. I hate the exercise of standing on one leg.  I can not balance and I feel foolish trying it. Afraid that I will have to go on the step.  Last time I could only go up three time... Sun, 17 Aug 2008 21:51:52 +0100 http://dailystrength.org/people/150699/journal/1250789 Went to a sculpture park with my boyfriend and his daughter.  The scupltures were pretty cool.  However I felt bad that my boyfriend had to push me in the heat.   We actually crossed over several streets with lights on the path.  This was very scary because there is not much... Sun, 17 Aug 2008 20:48:08 +0100 http://dailystrength.org/people/150699/journal/1249415 Dialysis went a bit better today. My pain is still pretty bad. Feeling a bit better regarding missing the concert.   Thanks to everybody for all of the suggestions and encouragement. It helps to know that people care and are supportive. Sat, 16 Aug 2008 22:14:37 +0100 http://dailystrength.org/people/150699/journal/1247915 I wish that I had a way to get to a concert at a local town festival.   Using the cane is not an option.  There would be to much walking.  But I am not able to get there and would not have anybody available to push me in the wheelchair.  The chair that I have I can not ... Fri, 15 Aug 2008 22:06:38 +0100 http://dailystrength.org/people/150699/journal/1247829 It has been a very rough week.  I have been in a lot of pain from my pt.  Now my right wrist is in pain, both knees, my lower back, and my left arm from dialysis issues.   It is so hard to maintain a positive outlook with all of this pain.  If the wrist pain persists I might... Fri, 15 Aug 2008 21:04:11 +0100 http://dailystrength.org/people/150699/journal/1234698 Nobody seems to know why I do not have my medicare card yet.  Spoke with two different reps and still no answers. The second rep claims that they will send me a letter about the status.  I do not believe him. No explanation about why it is not processed yet.   The first... Fri, 08 Aug 2008 13:39:32 +0100 http://dailystrength.org/people/150699/journal/1234645 Trying to resolve medicare issues today! Fri, 08 Aug 2008 13:06:04 +0100 http://dailystrength.org/people/150699/journal/1231129 Still having issues with my right wrist.  I have been seeing the chrio to get relief.  So far it has not started to help yet.  But I will keep trying.' Did not like the water pt instructor.  She seemed to not be very concerned.  Maybe I was having a bad day.  I... Wed, 06 Aug 2008 15:14:26 +0100 http://dailystrength.org/people/150699/journal/1217198 Nervous about the pt evaluation.  Hope I do not get the same person that denied it last time. The pain is not from cts.  It is something new; tenditionous of the wrist.  So I need to add more chriopractic visits twice weekly to my schedule.  Hope it helps! That does not... Tue, 29 Jul 2008 16:00:21 +0100 http://dailystrength.org/people/150699/journal/1214688 Will try to post some pictures soon. Right now there is much to do but I can barely type.  Attempts for pain relief are not working. Hope Dr Vjay can resolve the wrist issue.  Maybe I sprained it.  It hurts more the normal cts pain.  I can not where the splints at night... Mon, 28 Jul 2008 11:29:26 +0100 http://dailystrength.org/people/150699/journal/1213674 Next week I really wanted to go to the Wisconsin State Fair.  But it is my boyfriends birthday during the week and he wants to go to a military musuem.  So we will be going to the military musuem and whatever else he likes.  Hope I can use the wheelchair there. My hand really is ... Sun, 27 Jul 2008 20:50:34 +0100 http://dailystrength.org/people/150699/journal/1210683 Still waiting to resolve another billing issue with the dialysis clinic. No word yet regarding when I will get medicard.   Still working on paperwork for disability issues.  There is another questionare for a doctor about my abilities.  Still trying to decide which doctor to... Fri, 25 Jul 2008 21:42:54 +0100 http://dailystrength.org/people/150699/journal/1210123 Looks like I will finally get the check that I have been waiting for.  Actually they made a mistake and will be sending out two.  The social worker for the other days of the week had it in her hands.  Next week the new social worker will give it to me. When I went to the county f... Fri, 25 Jul 2008 15:12:50 +0100 http://dailystrength.org/people/150699/journal/1206201 Things did not work out regarding getting the band interview. I told the rep the days which I had open and he tried to schedule the interview when I was on dialysis even thou the editor said that day was not good. I emailed many times to try to change the interview date. Then he told me he would hoo... Wed, 23 Jul 2008 14:49:29 +0100 http://dailystrength.org/people/150699/journal/1196648 I am getting very irritated right now.   Still do not have any results regarding medicare issues. Do not have the referral.  I could kick myself for waiting to long.  But I did not realize the water pt referral had a time limit.  Then I needed time to heal after the sta... Fri, 18 Jul 2008 14:10:20 +0100 http://dailystrength.org/people/150699/journal/1196402 I left another message to the billing department for my dialysis clinic.  This is the third message without any response. Fri, 18 Jul 2008 12:03:25 +0100 http://dailystrength.org/people/150699/journal/1196386 Finally got in touch with the man regarding the band interview.  He apologized for the confusion and it might take place next week he did not set up at date.  He passed my email on to  somebody else in charge of  setting it up.  So now I am waiting to get the details fr... Fri, 18 Jul 2008 11:53:31 +0100