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		<title>Fragile X Syndrome Advice: Where do I start to get my child tested. - DailyStrength</title>
		<description>I have been trying to convince the medical community for several years now that my foster children possibly have Fragile X Syndrome.  I get ...</description>
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		<lastBuildDate>Sun, 12 Oct 2008 04:14:12 +0100</lastBuildDate>
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			<title>Comment by seratedsky</title>
			<link>http://dailystrength.org/c/Fragile_X_Syndrome/advice/637422-do-i-start/lastpage</link>
			<description><![CDATA[I would print out the symptoms list from NFXF website.  Highlight the things you see in them that are on the list.  Make sure the doctor knows that FXS is a spectrum disorder so just because the child doesn't have ALL the symptoms doesn't mean that he doesn't have it. 
  
 That website has awesome inf...]]></description>
			<pubDate>Tue, 21 Aug 2007 18:16:15 +0100</pubDate>
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			<title>Comment by AIy</title>
			<link>http://dailystrength.org/c/Fragile_X_Syndrome/advice/637422-do-i-start/lastpage</link>
			<description><![CDATA[Insist. My son, who had an ng tube chronically vomited blood. Sometimes so much he went into acute respitory distress. They told me it was common with ng tubes. I knew that wasn't it. I wanted a scope done. I let them calm me down over and over again. He was 12 pounds until he was two because what w...]]></description>
			<pubDate>Fri, 05 Oct 2007 04:14:40 +0100</pubDate>
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			<title>Comment by jakesmom02</title>
			<link>http://dailystrength.org/c/Fragile_X_Syndrome/advice/637422-do-i-start/lastpage</link>
			<description><![CDATA[You can get a referal from your kids doctor and they can get you in touch with someone who can test them . also try dr. randi hagerman on the NFXF web site.or email her diretly at randi. hagerman@ucdmc.davis.edu also heres some phone numbers You also try my cousin who works there Lorraine Ruiz clini...]]></description>
			<pubDate>Thu, 03 Apr 2008 09:13:03 +0100</pubDate>
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			<title>Comment by McChri</title>
			<link>http://dailystrength.org/c/Fragile_X_Syndrome/advice/637422-do-i-start/lastpage</link>
			<description><![CDATA[i live in Phila, Pa. I can only tell you that I went to my children's pediatrician and describe some symptoms and she had blood drawn and sent to a lab to be tested.  So go to your childern ped.]]></description>
			<pubDate>Mon, 19 May 2008 23:20:02 +0100</pubDate>
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			<title>Comment by tessaruth</title>
			<link>http://dailystrength.org/c/Fragile_X_Syndrome/advice/637422-do-i-start/lastpage</link>
			<description><![CDATA[My son's pediatrician gave me several number of neuropsychologists.  I made an appt with the neuropsych and she ordered blood work for my son.  That's how the Dx was made. 
 Good Luck! 
 Aleise]]></description>
			<pubDate>Thu, 19 Jun 2008 20:41:23 +0100</pubDate>
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			<title>Comment by xoSandy</title>
			<link>http://dailystrength.org/c/Fragile_X_Syndrome/advice/637422-do-i-start/lastpage</link>
			<description><![CDATA[I am in the same boat!  I just joined this support group for exactly that "support," and what do I find first...someone going through a similar situation....hooray! 
  
 I live in California, I too am a foster parent.  One year ago I had two siblings placed in my care--a 10 year old boy and 6 year old...]]></description>
			<pubDate>Mon, 14 Jul 2008 20:24:58 +0100</pubDate>
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