I am not sure what some of our members have had drugs surgery or radiation.I thought it might be a good idea to do an update that way if som... http://dailystrength.org Wed, 03 Dec 2008 23:47:36 +0100 DailyStrength RSS 0.11.3.0.6833 (FeedCreator 1.7.2) http://static.dailystrength.org/v/0.11.3.0.6833.53/images/promo/logo-round-rss.gif http://dailystrength.org http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage surgery not had radiation but on a drug called Somatuline autogel the largest dose and at moment the drug has dropped levels in normal range]]> Sat, 22 Mar 2008 15:22:42 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage talking with you guys. I had no meds for Acromegaly before my surgury,and no meds after.So far so good.]]> Sat, 22 Mar 2008 18:33:34 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage Octreotide injections, 3 times a day, (300mg daily) for 3.1/2 weeks prior to my 10/16/08 transphenoidal surgery to remove macro tumor. IGF-1 and GH going down down down slowly but steadily... No meds since, no tumor since, so far so good..another great idea from jokey...gracias]]> Sat, 22 Mar 2008 18:59:22 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage surgery, gone from half tablet of cabergoline to 1 whole...then up to 2 whole a week. still trying to find the right dosage as levels are still not normal.]]> Sun, 23 Mar 2008 04:18:35 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage HGH is going way down. No meds before surgury for the acromegaly and so far none afterwards.]]> Sun, 23 Mar 2008 11:51:36 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage surgery on 11/20/2007. I still have a very large amount of tumor left but thankfully my vision ...]]> Sun, 23 Mar 2008 18:55:59 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage surgery March27,2007anniversary coming up)no meds prior to surg, taking thyroid 112mcg daily,Haven't had follow up MRI-which was ordered last Sept. too chicken! Levels continue to drop, going to endo April 2, 2008.]]> Tue, 25 Mar 2008 22:14:42 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage octreotide 30mg once a moth worked at first but then IGF1 levels went up ,operation set for 30th of april thats if my sinus infection is gone (quack quack)little black duck]]> Wed, 26 Mar 2008 03:06:57 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage surgery? Is it because the tumors are too large?]]> Wed, 26 Mar 2008 08:48:39 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage surgery yet as its early days but the doc did say that if the medication im on at the moment doesnt work then there are injections to try and then surgery if that doesnt work. so how far can you go without having surgery???]]> Wed, 26 Mar 2008 11:29:42 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage surgery is not that terrible, I mean C-Sections aren't a breeze either, but we have babies. My goal from the time I found out was "Get this out ...]]> Wed, 26 Mar 2008 22:04:38 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage cabergoline is also known as dostinex, i know confusing...lol i see a few of you are using octreotide. how is that medication? do you feel its working??]]> Thu, 27 Mar 2008 16:52:40 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage radiotherapy,to kill off, any cells, from what I have gleaned, they try the meds first to see if the ...]]> Fri, 28 Mar 2008 20:06:39 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage radiotherapy,to kill off, any cells, from what I have gleaned, they try the meds first to see if the ...]]> Fri, 28 Mar 2008 20:06:40 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage surgery 4/2007, had radiation May and June 2007. Getting monthly injections of Sandosatin for 5 months. My counts are coming down. Still have tumor.]]> Thu, 03 Apr 2008 12:10:55 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage surgery is more successful, because they have more chance getting all the tumour out, hence no radiotherapy, maybe no meds, its definately the best opt...]]> Thu, 03 Apr 2008 14:46:02 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage Fri, 04 Apr 2008 07:59:10 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage hope your IGI-F is ok too]]> Mon, 07 Apr 2008 08:20:47 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage surgery and radiation therapy but no drugs as of yet]]> Tue, 08 Apr 2008 20:16:19 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage Wed, 09 Apr 2008 16:30:46 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage hope it helps people new and old just to see what different ways we are trying to beat acromegaly.Thankyou to everyone JJx]]> Wed, 09 Apr 2008 17:36:17 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage surgery for me or different drug yet.I am bouncing bu...]]> Sun, 13 Jul 2008 10:40:06 +0100 http://dailystrength.org/c/Acromegaly/forum/2710193-i-am-losing-track/lastpage Mon, 14 Jul 2008 10:41:21 +0100