What is von Hippel-Lindau Disease VHL

Von Hippel-Lindau disease (VHL) is a rare inherited genetic condition involving the abnormal growth of tumors in parts of the body which are particularly rich in blood supply. <...

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Anybody here?
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FridayThe...
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Hi, just wanted to check and see if this board is still active at all??
Posted on 04/12/08, 06:04 pm
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Reminder: This is a support group for von Hippel-Lindau Disease (VHL). We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
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tessasmom
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Reply #1 - 04/17/08  2:18pm
" I am here and dealing with VHL, as well. I am the MN chapter chair for the national support organization and we have local chapters all over. "
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vicshalls
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Reply #2 - 06/04/08  7:20pm
" I was just wondering how things went for you. My dad died 30 yrs ago from complications of vhl and my brother has it as well. "
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tessasmom
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Reply #3 - 06/05/08  1:31pm
" I'm leaving Sunday for NIH, and will be having my kidney/adrenal done on Tuesday. I'm looking forward to feeling better. I'll not be online for a week or so- but then hope to be back to it.

Thanks for asking.

How is your brother doing? "
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