Has anyone had problems with edema
Has anyone had any problems with edema? My daughter has been very "puffy" for a couple of months. The drs …
Turner syndrome encompasses a number of chromosomal abnormalities, of which monosomy X, is the most common. It occurs in 1 out of every 2,500 female births[1]. Instead of the norma...

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My daughter has ts
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My daughter Savannah was diagnosed at the age of 5, she is now almost 12. Up until recently I thought everything was going fine. She has started being very withdrawn and after reading some of the remarks left by other I am even more worried. She doesn't want to be involved in family activities and other things. She doesn't seem to care very much about herself, doesn't pay attention to her clothes being clean, her hair being brushed and I have to force her to take a shower. I am very concerned about her self esteem. Also recently she has gotten edema (swelling) in her legs and it is moving to her arms. She struggles in school and kids tease her for various reasons. She also has celiac disease, one more reason for kids to tease. She is such a sweet, caring and sensitive girl that I am very worried about the effect it will have on her view of herself.
Does anyone have any advise? Kristina Posted on 07/24/08, 03:07 pm |
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Kristina,
I went through what your daughter is going through. I think the best thing is just to be there for her. Let her know you're there, and that she's not alone. Counselling could be an idea ... encourage relationsips she does have. Maybe there's some kind of hobby she enjoys that could raise her self esteem? If you could find another girl around her age with Turners ... that she could even write to. Hope that helps?? Jen
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Kristina,
It sounds like you daughter is depressed. I would encourage her to go out and meet people and so forth. Be careful when encouraging her to take pride in her appearance that you don't put her down. I know that is a rough age. I went thourgh some of the teasing too. Hope it helps. -Wendy
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Hi Kristina,
My daughter is 14 years old and was born with TS. She has always been bullied in school and still is.You just let her know your on her side and you will go to the school as many times as it takes until they nip it in the bud. Bullies are not to be tolerated I know it is a hard thing to deal with, not being able to take away your childs pain. I've cried many times myself. You need to let your daughter know that there are always going to be people in life that are mean. Those people were not brought up with manners and respect for others. You let her know that she cannot let those people define who she is as a person and do not give them any satisfaction to know they are getting to you. You let her know you are always there to hear her feelings and thought. She not alone. On the subject of personal care. My daughter too was like that. Now that she is a teenager She like to dress in style, style her hair and the showers are most of the time with out being told. She will probally grow out of it. My daughter is registered on this site if your daughter would like to talk. It might help to have her talk to somebody who knows exactly what she's goung through. Take care, Tracy
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i feel the same way your daughter does. i am thirteen and only just found out a little over a year ago that i have TS. it is tough on us. once u read things about it, it makes u feel so frusterated and i wonder y it had 2 be me. i hated everything about me, especially my looks. i would look in the mirror and say, "I am so ugly" but then, even though i know i've only had it for a year, i have learned a lot. i have friends that love me the way i am, and don't want to change anything about me. they r my rocks. they have tought me so much, and when i have days where my self esteem is just awful and i hate everything about myself, they r there for me. things are hard when u have TS. one of the hardest things is that i know i will never have kids. that is the hardest thing for me. i look at my newborn second cousin and how happy his mommy is i feel horrible that i will never get to experience the same thing she has. it just won't be the same. but, i'm just trying to say that i know what your daughter is going through, and i would love to talk to her and write to her or email her. i have also been wondering if there was someone my age who i could talk to. if u think she'd like to,i'd love to write to her. she could even set up a profile on dailystrengh if she wanted! tell her i said hi and i would love to talk to her.
~Lauren~
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Has anyone had any problems with edema? My daughter has been very "puffy" for a couple of months. The drs …
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