Turner Syndrome Support Group

Big hugs to you. I don't know anyone that's had the surgery but there are other ways for her to become a mom. Adoption and surrogates are only a couple of options. If she want's to be a mom there are ways for that to happen.

I wish I had some advice for you. My daughter is facing the same surgery as well - but we have several years before they schedule it since she is only a baby. I know what you mean about wanting to do the right thing. It is such a big decision and my husband and I are dreading that day. We will keep you in our thoughts and prayers. Even though the Dr's think of this as a simple or common surgery - it is not simple or common to your daugther. Sometimes they forget how scary it is for parents and patients to face things like this - even though they see cases everyday - it doesn't happen to your daughter or you everyday.
Good luck and I will keep praying! :)

This is the appropriate treament for girls at risk. I have mosaic Turner's and I had the surgery over 20 years ago for the same reason. I am a physician as well. It is the right thing to do and I don't regret my parent's decision. There are other ways of being a mother. I am the mother of a beautiful 3-year-old boy my husband and I adopted from Guatemala in 2005 and I wouldn't trade him for anything in the world!!. We have just started the process to adopt again within the next year.

I know it is a difficult decision, but it is the right thing. I wish you and you daughter the best.

I hope you have found peace with your decision. I just received an email from our edno. dr. - and she is saying that they may want to take my baby's ovaries earlier than he first told me - age 4-5 - now he said that they would like to do it at age 2-3. I am really stressed over this. I have asked for a second opinion - not for the results but for a surgeon. I want the best for her - and I know you want the best for your daugther too. God bless you!

I have not heard of the surgery. Your daughter can achieve anything she wants to. God Bless.

I have Turneer's... I am a 45 year old woman... I have the mosaic for of the syndrome... I was told at about 14 that my ovaries were just "streak tissue" at that point... I've never heard of this surgery... I'll be watching the posts... hope to learn more...

For those reading this thread who are confused, the surgery is NOT for all patient's with Turner's syndrome. It is ONLY recommended for mosaic Turner's who have an unidentified chromosome fragment. In some cases there is concern that this fragment could be Y chromosome material. If so, there is a 25% chance of developing gonadoblastoma. Gonadoblastoma is cancer and a 1-in-4 chance is too high a risk to take. Let me also assure you that even though I am a doctor, I don't regard any surgery as simple or routine, I simply said it is the recommended treatment. I have lived through this myself, and at 15, I was smart enough to know what having my ovaries removed would mean for me, and it was not easy. Fortunately, my mother was there to cry with me. Now that I am older I have a different perspective. As a pathologist, I see cancer almost every day - that is way too often - and I see it diagnosed in people who are way too young to die. I love my son more than anything, and it would have been a tradegy not to be able to see him grow up because of cancer. So, I am at peace with my parent's decision. I know you will be too someday, and so will your daughter, but it may take some time. My prayers are with you.