Turner syndrome encompasses a number of chromosomal abnormalities, of which monosomy X, is the most common. It occurs in 1 out of every 2,500 female births[1]. ...
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Are there any good books, or other info out on TS?
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I am looking in bookstores and online and I have only come up with 2 books. I am wondering if there is any GREAT information out there that I may be over looking. Thank you!
Posted on 04/12/08, 02:04 am |
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When my daughter was first was diagnosed, her endocronologist mailed us a book that outlined many of the tests, health concerns and emotional issues we needed to address. I just wonder if your daughter's doctor might be of help to you. I also have used the internet a ton just because there is so much info., not all of which applies, but info none the less. Hope this helps. 
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Try turnersyndrome.org. It's the national society's website and there is a lot of helpful information there about TS and it's related issues. :-)
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check out turner syndrome society webisite and they have a friend/family guide which is incredibly helpful, also the www.magicfoundation.org is so helpful with growth disorders... I even called them to ask advice with HGH since our Endo was useless.
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