Patau syndrome, also known as trisomy 13, is a chromosomal aberration, a disease in which a patient has an additional chromosome 13 due to a non disjunction of chromosomes durin...
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My daughter died of patau syndrome and i'd love to speak with other familys who are going through or have been through a similar thing.
Posted on 09/29/07, 05:09 pm |
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I can not say that I have gone through exactly what you have gone through.
I chose to end my pregnancy when I was 5months and told my little girl had Trisomy13. There was a voice that wondered if I should do what you did, but I realize that emotionally I could not have handled it. So, I want to let you know that I have so much respect and awe that you could make it through such an ordeal. It has been 20 days since i last felt my baby girls kicks and it is hard to think about it. I feel lucky that I was able to have for the time I did and lucky to be able to have her blessed before she left us. I lost my dog of twelve years two days later, so I know that they are together romping around and keeping each other company. I wish you all the best. I also wanted to let you know that the doctor told me I should not be afraid to have children. There is a less than 1%chance that you had it in the first place and the likelihood of it happening again is slim to none because your chances don't increase with each pregnancy. Although, I have to say this does little to take away my anxiety of trying again, I wanted you to know in case you didn't. My heart goes out to you and your husband and all those that fell in love with shae. 
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