What is Trisomy 13 Patau Syndrome

Patau syndrome, also known as trisomy 13, is a chromosomal aberration, a disease in which a patient has an additional chromosome 13 due to a non disjunction of chromosomes durin...

Join Now

Free, anonymous support from people just like you.

Spread the Word!
Get a DS flyer to post
DS Store is Open
DS t-shirts and more
  We've added new hugs! Send some love to your friends now!  
Discussion:
life after patau
Watch this 
View More Posts Ignore
I feel blessed to have met my daughter shae,she defied everything that the doctors said would happen to her. Although it was one of the scariest times of my life im so glad i continued with my pregnency.
We decided that it wasn't our place 2 play God and so we let Shae decide if she survived or not. But I can also understand why someone would terminate given the oppertunity.
While all this was happening in our lives we also had to keep our other daughter happy,so we involved her as much as possible while still keeping her routine,we never lied to her but had 2 tell a much simplier version of the truth.
Me and my partner only ever made a decision that we in our hearts we would be able to cope with.
But me and my partner would love to talk 2 similar people in our situation.
Posted on 09/27/07, 08:09 am
RATE THIS POST:
Inspirational
Moving
Helpful
Creative
0 Replies Add Your Reply
Reminder: This is a support group for Trisomy 13 (Patau Syndrome). We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Comment:
Email me when others reply to this topic help


Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2008 DailyStrength, Inc. All rights reserved. Terms of Service | Privacy Policy | Report Abuse