Patau syndrome, also known as trisomy 13, is a chromosomal aberration, a disease in which a patient has an additional chromosome 13 due to a non disjunction ...
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life after patau
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I feel blessed to have met my daughter shae,she defied everything that the doctors said would happen to her. Although it was one of the scariest times of my life im so glad i continued with my pregnency.
We decided that it wasn't our place 2 play God and so we let Shae decide if she survived or not. But I can also understand why someone would terminate given the oppertunity. While all this was happening in our lives we also had to keep our other daughter happy,so we involved her as much as possible while still keeping her routine,we never lied to her but had 2 tell a much simplier version of the truth. Me and my partner only ever made a decision that we in our hearts we would be able to cope with. But me and my partner would love to talk 2 similar people in our situation. Posted on 09/27/07, 08:09 am |
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