Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. T...
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Hi I am new to this and have read though some of the questions postedon here,and am curious as to what MVD involves. And to all of you that are suffering with TN like myself, hope you have some good possibly painfree days in store for you
Posted on 06/07/08, 06:06 pm |
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Hi i have had the op M.V.D.This was on the fith of March this year.I had no choice as the side effects from all the tablets were so so awful.It is a major op,takes appr five hours.I have a five inch scar behind my right ear.I have been pain free since the day before my op.But it wasnt easy as i had problems in hospital.I had pneumonia,lumber puncture,clinical meningitis.I am slowly getting back to normal.My surgeon said this was the best long term option.He was superb,so find a good surgeon.He is very pleased with me.Good luck. Janice. 
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I have had 2 MVD's. The first in 01 which helped some and one in 06 which did nothing. I am a worst case scenario pt. Dr Jannetta plans now to cut/remove part of the nerve and do another MVD if needed while he's in there.
It is a good first step. How well it works depends alot on the severity, and person.
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Dr. Jannetta paralyzed my face with MVD so just know that this is a potential complication.
For those who have success it weorks great andmany do have success. Lee j, author A pained life
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The Trigeminal Neuralgia Association has quite a bit of information about the MVD. We also have a network of individuals who will share their experiences with you. I cannot remember if we can post links (it doesn't look that way), but you are welcome to send me an email, and I will help you get involved with a group of people who have had the MVD. Take care, and I'll be thinking about you.
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They place a piece of teflon sponge between the vessel (artery or vein) and the nerve.
I have had 2 from Jannetta myself. My left side lost about 60% feeling. He touched on the occipital nerve causing me to have occipital neuralgia also. He is the best but things happen. I have to have another, I am having his partner Dr. Raymond Sekula operate. At this stage of the game (I've had TN 7.5 yrs) I want a young set of hands operating. Jannetta technically retired but still operates. I think he's getting to old at this point. A good man but that's just my preference.
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