Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. T...
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Hi! I'm new here and feel so alone so I'm glad I found this page. I was diagnosed earlier this month after 3 weeks of pain and no one knowing what was wrong with me. I finally went into my regular doctor in tears and he knew right what was wrong with me and sent me to a neurologist. I have had an EEG and MRI which ruled out MS. I am pain free for now after Tegretol and Lryica so I'm hoping they both continue to work. Has anyone else here had Tegretol? I like that it helps with the pain but get aggravated because I get so tired and can't even hold my head up. I can hardly make it through my day sometimes and getting home from work and staying awake can be a huge challenge, i'm afraid that I'm going to fall asleep at the wheel. Has anyone else here had Tegretol and does this exhaustion eventually go away? Thanks for your support.
Posted on 03/11/08, 12:03 am |
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Hi , sorry to hear ur going thru this. I have had it for a year. I am on Tegretol and no I haven't been able to pull out of the drugged foggy brain feeling. I have had the MVD and am hopefully going to be able to wean down or off soon. Good Luck. 
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Yeah I have the same effect but im also on other meds that make me tired too not to mention the pain itself wearing me out,you are very brave for continueing to work but PLSE do be VERY careful behind the wheel,take care sweety and hope things get better for you!
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Hello,
I know how you feel. When I first got it, I did not know what was going on. My doctor knew and told me I had neuralgia. Sent me to a neurologist. I never had a EEG or MRI. They did give my a injection thought my nose and the right hand side of my face drop. Pain was still their. Next time I went back I was going to have my nerves cut but doctor was not around. Funny enough from then on I was clear for 3 years. But its returned and I really hate it.I am now on Tegretol and gabapentin. I also get tired and so moody its unreal. So I know how you feel when it comes about work. I even tired to get dissabillity becauseb i am having a hard time like you. But its a condtion so no help. I must say that when I was only on Tegretol I never had any problem at all, it was great, so I hope it does go away. Tegretol was my life saver in the begining. So good luck
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