Tourette Syndrome & Tic Disorders Support Group

I know each child is different, but right now hunter is pretty mild... he started sniffing yesterday, that is a new one now,, I prefer it ove the throat clearing, that is weaning it self off, only a couple na na na.. lately... he has no idea what he is doing,, I saw him in the van he was kind of dancing in his car seat to a movie song, his arms were going in a circular motion and he was making some noise, i am like, look curt, he said he is just bopping to the song, stop staring at him shelley, I analyze everything wondering if it is a normal behavior or a motor tic, or a new phonic one,, it is so weird to even say those words, TIC, TIC, TIC,, definetely a word i never thougt I would hear in my family.... I phoned the tourette chapter in edmonton here and talked to a women for an hour,, she has an 8 year old son with tourettes named Hunter, can you believe it, I have only met two hunters in my life, and another one has tourettes, i said maybe we should not have named our child hunter.. she was an amazing women, and explained that tourettes is a spectrum disorder and maybe my hunter might only have tics, and nothing else, or associated disorders will come over time,, I defienetely would say hunter has an anxiety disorder, he is a very timid child, and scared very easily, I never thought much of it but now looking back, he is always scared, i took him to spiderwick chronicles, dumb idea, I should ahve left the theatre, but we were with his younger friend and he was fine, so i thought he will be okay, he has not been able to pee in the bathroom alone, he always asks us to come with him, he does have night terrors, he sleep walks, not so much anymore, but for about 3 years, at 11 pm every night he would come out to the living room and would be asleep, also he has mild and moderate delays which I associated to his stroke, but it was interesting because th doctor told me that his delay should be in motor not in learning, so he said there might have been some other damage that just didnt show up on the mri... he does zone out alot too, do any of your kids do that , sometimes i need to say 3 times, hutner, hunter , hunter.. and he would say ,, oh,, what... I had just said to my mom a month ago, something is still not right... wierd huh, a mothers intuition, my husband would always say, he is just lazy, he is ignoring you... he is a boy, i was like that , he is in such denial, it is really sad... but he is a wonderful husband... and that is what counts... well I better run... take care.. hugs.. shelley.
Posted on 06/24/08, 11:06 pm