Thoracic outlet syndrome (TOS) consists of a group of distinct disorders that affect the nerves in the brachial plexus (nerves that pass into the arms from the neck) and various ne...
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Newly diagnosed
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Hi Everyone!
I am glad I found this group! I am 20 years old and a junior in college. I am majoring in nursing and sociology. I just found out about two months ago that I had TOS. It was a great relief to know what was causing the horrible pain I had, but also not the easiest thing to treat. After being told by multiple doctors that it was all in my head or I was just stressed out, I about cried when I actually had a diagnosis. I was so tired of people not listening to me! I know my body! Anyway, I did physical therapy for about 6 weeks with no help at all, and only increase in the muscle tightness from it. I am supposed to go see a thoracic surgeon in about 4 weeks when I go back home. I have heard good and bad things about surgery though, so I am not too sure yet what will happen. I do know I cannot live with this pain anymore though, so I guess I will find out what the surgeon and I decide soon! Well, just wanted to say hi to everyone and introduce myself! :) Posted on 07/15/08, 09:07 am |
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Sometimes doctors can be such idiots. I was diagnosed recently for TOS as well. I don't know where you live, but Dr. Julie Freischlag in John's Hopkins in the place to go. It's her speciality. I've had random questions that people have asked me and when I don't know the answer or am unsure I can email her and she usually repsonds within 24 hours. She's awesome.
Good Luck. 
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I have not been on in a long time I apologize....How are you feeling?
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