Scleroderma is a rare, chronic disease characterized by excessive deposits of collagen. Progressive systemic scleroderma or systemic sclerosis, the generalised type of the disease,...
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Symptoms of SD
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My symptoms have changed some since diagnosis in 2006. I have also been diagnosed with other diseases since then as well.
I have lung involvement now and bone involvement. I have arthritis of the spines, knees, ankles, hands and neck. I have Sjogrens, which has caused hearing loss and other things. I have to use a walker and/or wheelchair it is so bad some days. Has anyone else noticed this happening to them? I have also noticed an increase in my my anxiety when I have flares. I have a major meidcation phobia so I do not take treatment for any of these except when the pain is so severe that I have to have something for it. Just wondering what everyone else thinks. Posted on 01/28/08, 10:01 pm |
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Well if things are getting worse it may be time to start taking some medications to slow it down.Even if we don't like it sometimes we do need it. hugs 
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Sometimes it seems like I've been getting diagnosed with new stuff my whole life. First it was depression & Petit Mal seizures. Then acid reflux, Achalasia, Arthritis in my back, asthma, Grand Mal seizures, and last but not least, Scleroderma and Raynauds. Maybe I can be on a plateau now and not get diagnosed with anything new for a while ;)
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Yes hope i settle into a platue to soon. I think I have sojjerns now also. Am UCTD now maybe MCTD> Their is a MCTD group with some UCTD people there too. It is a nice positive group. hugs marilyn
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