What is Reflex Sympathetic Dystrophy

Complex regional pain syndrome (CRPS) is a chronic condition characterized by severe pain following injury to bone and soft tissue. The International Association for the Study of P...

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Im a newby
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Hello eveyrone. Im new here and was given this website from a friend. I hope I can find support and insight to my RSD diagnosis and also a better understanding of what it is. I feel alone in my struggles right now. Just like my fibromyalgia, RSD is not very known adn its just as frustrating.

Anyway, my name is Diane. Nice to meet you all.
HUGS
Posted on 07/07/08, 09:07 pm
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Reminder: This is a support group for Reflex Sympathetic Dystrophy. We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

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Reply #1 - 07/09/08  4:12pm
" Hi, Diane. Welcome to the group. :) "
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Reply #2 - 07/10/08  2:47pm
" Hi Diane, I'm TIna and also new here. RSD can be SO very frustrating. I've dealt with it (and swore at and about it LOL) since '93.
The SO and critters help keep my mind busy with the good things and always seem to know when I need that extra bit of TLC.
I'm currently looking for a good doc in this area (wa state-Whidbey Island). "
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Reply #3 - 07/22/08  11:15am
" thanks for your responses. Im suppose to go for my first nerve block this friday. Im not sure if I am doing the right thing but oh well...I give up trying to figure out what Doc is right and what one is wrong. So far, I have had alot in my life that have been "wrong" in alot of ways with my health. *sighhhh "
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Reply #4 - 07/22/08  9:58pm
" Hi Diane-
If I have not yet responded to you, WELCOME. I too suffer from RSD and it has changed my life. Where is your RSD located? I have it in my left leg. I am very empathic to those who also suffer from this disease. If you would like to chat, please write to me. I am here most everyday. Check out Women Only. It's fun too. Warm Regards, "
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Reply #5 - 07/24/08  9:04am
" Hi there
My RSD is in my left foot/snkle but Im starting to feel symptoms in my calf as well as burning in my inner thigh which Im not sure if thats part of the RSD. All I know is that it really burns at times like my foot. YES RSD is very frustrating to me too. I havent had a "normal" life since I injured my ankle almost 1 year ago this month 7/29/2007...after misdiagnosis of my injury several time and then finally surgery now I have RSD. Seems hopeless and never ending. The worst is that people dont understand it and they look at you "odd" when you try to explain it. I also have fibromyalgia...same resonse I get for that too so I usually suffer in silence. (my sisyer says fibro is nothing ut a depressed persons disease....in actuality, like RSD, with fibro the constant daily pain is what makes you depressed NOT the other way around). Anyway, thanks for responding to my post. HUGS to you. Nice to meet you. Im so sorry you too suffer with the RSD. Im newly diagnosed. My ortho thinks it started after the surgery, the Pain Management Doc said noway it started way before the surgery. Who knows ...I dont know who the heck to believe. "
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Reply #6 - 08/19/08  9:31pm
" HI Diane~
I am really new to this group too.Not to pain and not to DS but new to this damg RSD,and it is the most painful thing I have ever had in my life!!!
Mine is also in my left leg,foot,calf sometimes upper thigh,welcome I get more info here then from my Dr's..
Thanks & hugs to you all.Deb "
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