Pulmonary Embolism Support Group

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PE or PI

By gamer
11:58 pm

New patient to Pulmonary ...

By SurvivingAmazon
8:21 pm

New here - introducing my...

By SurvivingAmazon
7:56 pm

New to the Support Group

By SurvivingAmazon
7:39 pm

What to ask about right a...

By khurney1
3:39 pm

Coagucheck

By Shellerooney
3:27 pm

Bleeds under the skin?

By kate37
Yesterday

disability info?

By AlexandraK
Yesterday

Blog Intro: Notes from a Doctor's Practice

By Dr. Orrange March 30, 2008 9:13pm 29 Comments

DrOrrange

For almost three years you have seen my posts in many communities and I have been able to jump in to discussions when possible. Well, because Dailystrength has grown we are trying a new format to reach as many of you as we can: "Notes from a Doctor's Practice" will be my new blog.

I plan on covering important news in medicine, new study results, …

Stories

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Stopped Smoking

I started smoking at a very young age, yeah the st...

gamer Jul 24, 2008

Stopped Smoking

Thursday, July 24, 2008 | A Positive story

I started smoking at a very young age, yeah the stupid age that most of us do stupid things. It does feel good to say though, that I no longer smoke. I have not had a one since June 22, 2008 and every day after that I can feel the difference.

1 Recommendation
creepy craw-lees

anyone experience a feeling of ants crawling on yo...

goldengirl3 Jul 23, 2008

creepy craw-lees

Wednesday, July 23, 2008

anyone experience a feeling of ants crawling on your skin. It is a sensation I have recently dev eloped. annoying as hell. wondering if this has something to do with my loss of sensory and peripheral neuropathy. also body is very itchy. inflated blood pressure cuff on my arm makes me feel like my hand is going to explode.

2 Comments
New here!

7/21/08So I should be working, but what the hay......

kjoyn Jul 21, 2008

New here!

Monday, July 21, 2008 | A General Update story

7/21/08
So I should be working, but what the hay.....I have so much stuff running around my brain I thought I'd check in with Daily Strength! I just joined. I'm struggling with so many questions about my Hx of PE, being in denial about it, wanting to just forget it so I can move on with a normal life (and normal pregnancies).....Since I'm still in my denial stage, I've just set up ...

1 Recommendation
Journal Entry for July 19...

This last week has been very interesting. Wo...

flipperclot Jul 19, 2008

Journal Entry for July 19, 2008

Saturday, July 19, 2008

This last week has been very interesting. Worked a different schedule -doing a lot of staff teaching this week -different, but I wouldn't want to do it all the time. I like to keep my hands in the pt. care. One of the girls in our group is still out in her own little world and only does what she wants to do, when she wants to do it. She is so NOT a part of the team.&nb...

1 Comment
im outta it

im feeling. out of it today. tired and exauszed il...

peped2k Jul 17, 2008

im outta it

Thursday, July 17, 2008

im feeling. out of it today. tired and exauszed
ill get to it eventualy. just dealing with an increased back pain . im now on the the long lasting version of oxycodone called oxycontin its been playing silly bugger with my pain levels and such. but ill bounce back. got a wedding to go to this weekend. cousen is getting married. right now im sitting on 30+ hours awake .. need sleep well that...
KNEES

"you have crappy knees". THAT was ...

goldengirl3 Jul 17, 2008

KNEES

Thursday, July 17, 2008

"you have crappy knees". THAT was the diagnosis from the orthopedic doctor after he took x-rays of my knees. have been having so much pain, especially when i AM SLEEPING. He tells me I need new knee replacemnents but no one in their right mind will operate on me with all my health issues. blood pressure will bottom out due to my autonomic dysfunction and I will not sur...

2 Comments
A Quick Introduction

My husband (40 yrs) is coming home today after alm...

JandR Jul 15, 2008

A Quick Introduction

Tuesday, July 15, 2008

My husband (40 yrs) is coming home today after almost 4 weeks in the hospital. It began with his ICD firing 53 times in 4 hours. This led to an unsuccessful ablation that resulted in an abdominal perforation, Heparin allergy, DVTs, and a massive Pulmonary Embolism.
(The ICD was implanted due to CHF and 7 years of Cardiomyopathy.)
I am exhausted, overwhelmed, and scared ...
routine

The DVT and PE are a month behind me now and I...

LirSudi Jul 14, 2008

routine

Monday, July 14, 2008

The DVT and PE are a month behind me now and I'm feeling much better about the whole situation. I feel like any minor or major changes in my body or behavior, I simply attribute to Warfarin--the reality of the situation I am unsure of, but now its a running joke in the house where even if I just sneeze my husband or I will say "its b/c of the blood thinners".
I have been unable to wo...
Journal Entry for July 13...

Same scenerio, different day. Work one day, ...

flipperclot Jul 13, 2008

Journal Entry for July 13, 2008

Sunday, July 13, 2008

Same scenerio, different day. Work one day, sore as all getout the next 2. I didn't even do that much running around yesterday. I kept forgetting to take something for pain, but I just did because now I have a headache. I have been reading some from the fibro and fatigue support groups on here. It sounds like things get progressively worse until you are disabled....
Journal Entry for July 12...

hubby doing fine. working hard at his new job. lik...

goldengirl3 Jul 12, 2008

Journal Entry for July 12, 2008

Saturday, July 12, 2008

hubby doing fine. working hard at his new job. likes it alot.can retire from this one. only problems is 1/2 the pay. but better than no job and no pay.
most of my problems lately have been due to autonomic dysfunction. primary wants me to see new doctor in phila/ university of penna. real garu in field of shy dragger, guillian barre, autonomic dysfunction. he is suppose to help me figu...

2 Comments
PE/DVT

Hello all...so here goes my story. I was diagnosed...

reginaino... Jul 10, 2008

PE/DVT

Thursday, July 10, 2008

Hello all...so here goes my story. I was diagnosed with PE on December 14th 2007, had a large blood clot on each of my lungs. Admitted to the ICU for 2 days, my doctors swears this PE happened from BC pills. I was on orthra. I was recently told by my doctor that I have to be on coudamin for 1 year.

2 Comments
Journal Entry for July 9,...

Physically I feel OK. For some reason my hus...

flipperclot Jul 09, 2008

Journal Entry for July 9, 2008

Wednesday, July 9, 2008

Physically I feel OK. For some reason my husband decided to freak out on me tonight while I am at work and told me that if I ever talk to a male friend that I met on DS, he will leave when I get home from work. I tried to tell him we are just friends-he just happens to be a guy -a guy with a lot of the same problems as me who understands what it is like to entertain the issue of OMG -...

1 Comment

Stopped Smoking

Thursday, July 24, 2008 | A Positive story

I started smoking at a very young age, yeah the stupid age that most of us do stupid things. It does feel good to say though, that I no longer smoke....

1 Recommendation

Member Photos

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VACATION by kjoyn Jul 19, 2008
FUN by kjoyn Jul 19, 2008
SPRING TIME by kjoyn Jul 19, 2008
EASTER by kjoyn Jul 19, 2008
BATH TIME by kjoyn Jul 19, 2008
HOME by rmb Jul 18, 2008
KH IN GG PARK by khurney1 Jun 30, 2008
HAPPILY EVER AFTER by LirSudi Jun 18, 2008
THE HUBBIE by LirSudi Jun 18, 2008
OUR GIRLS by LirSudi Jun 18, 2008
ME AGAIN by LirSudi Jun 18, 2008
MY LOVE by LirSudi Jun 18, 2008

Pulmonary Embolism Information

By far the most common form of pulmonary embolism is a thromboembolism, which occurs when a blood clot, generally a venous thrombus, becomes dislodged from its site of formation and embolizes to the arterial blood supply of one of the lungs. Symptoms may include difficulty breathing, pain during breathing, and more rarely circulatory instability and death. Treatment is with anticoagulant medication, such as warfarin. Other rarer forms of pulmonary embolism occur when material other than a blood clot is responsible. Such materials can include fat or bone (usually in association with significant trauma), air (often when diving), and amniotic fluid (affecting mothers during child-birth).

Signs of PE are sudden-onset dyspnea (shortness of breath, 73%), tachypnea (rapid breathing, 70%), chest pain of "pleuritic" nature (worsened by breathing, 66%), cough (37%), hemoptysis (coughing up blood, 13%), and in severe cases, cyanosis, tachycardia (rapid heart rate), hypotension, shock, loss of consciousness, and death. Although most cases have no clinical evidence of deep venous thrombosis (DVT) in the legs, findings that indicate DVT may aid in the diagnosis.

Acutely, supportive treatments, such as oxygen or analgesia, are often required.

Massive PE causing hemodynamic instability (marked decreased oxygen saturation, tachycardia and/or hypotension) is an indication for thrombolysis, the enzymatic destruction of the clot with medication. Some advocate its use also if right ventricular dysfunction can be demonstrated on echocardiography.

See more Pulmonary Embolism Information.