Prostate Cancer Support Group

Amazing "Wives". His situation is almost identical to mine. I am doing well after having pure External Beam , other wise known as direct radiation or IMRT. I also was under the care of a wholistic practioner that helped me minimize the potential harm and side effects of the radiation by taking special herbs and behavioral pracatices.

I am a not a doctor but I think I made the right decision to not have the seed. The beam was enough.

Personally, I don't think the medical doctors really know what is best for us as much as they might want us to believe. We are very empowered and intelligent beings and if we do our homework, I think we should go with our intuition after all of that.

The doctors are here to inform us and treat us but they are not healers nor ar they our higher power.

I puposely did not return to my original urologist because he treated me as if I was stupid and he had this framed litrature on his office wall saying that he is a healers becuase he is a doctor. Hors**t. Again doctors are treaters not healers.

With contained cancer, Gleason 6, there is no reason to rush into treatment. If you are going to do "something," go to Canada, Mexico, Caribbeans for HIFU.
I've been doing mushrooms for over a year, with PSA monitoring, well under control.

Amen, JeffMM!!!

My husband had HIFU in Toronto April 27, 2008......no side effects, and everything works! Recovery was minimal, supra pubic catheter out in 7 days, and no problems with the small incision healing. No incontinence, no ED.

He has his first post-op surgery PSA the end of July which will "tell" the final result as far as no cancer present.

But, until then, his urologist says everything went great, looks great, etc.

AND, the staff in Toronto is WONDERFUL!!!

Can-Am HIFU Center in Toronto; highly recommended by virtue of experience!

P.S.

And, our medical insurer, Blue Cross/Blue Shield paid the total bill except for $39.00 towards our deductible!

Jeff, you may be very well right for many. But even contained prostate cancer is known to suddenly take a turn for the worse.

"Wifes" , he should go with his gut. By now he has gotten much information and consider that to be the ingredients for the mix (mix being the the decision). But, remember without thr intution the mix is far from complete for the intuition is the primmary ingredient. It alone is the sweeteset.

Now bake the cake. Only he can do that. By divine law his inner knowledge cannot fail. It is not possible.

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We can barely afford to drive across town let alone canada or mexico. We are not rushing into anything as of yet, I am glad whatever treatment it is you are doing is working for you.

Lorelei29

There are clinical trials here in the U.S. starting up for the HIFU......you can talk with the Urologist OR do some checking on the internet/web.

Good luck..........DK

My husband underwent radical surgery almost 2 years ago. He is 48, I am 46. And although we no longer have a sex life, I am just grateful that we have each other. Sometimes he does say that he wished he would have gone with other options, but I think no matter what, things would have stopped working. They tell us now that implants are the only other option. We have not decided.....our insurance won't cover anything related to ED, so the cost is part of the issue and because he is also diabetic, infection is the other issue. Just give you husband all the love and support he deserves and needs.....network for the support that you might need.....reach out

Well the battle with our insurance company is over. I should have followed my first instinct and have my husband change his medical group to the one here in Butte. We are a large county but not too populous so either the drs offices take our ins or not...big choice huh. I should not have listened to the 1st person from the ins co., as she steered us way off course, but then I think she was responding out of her heart which HMO's apparently do not have LOL (right?) So We changed my husband over, he has a new primary care dr here and the urologist from the other group faxed all the documentation and referral to the local oncology center and he finally has an appt July 15. But what is killing me the most, is here we wives are trying to be supportive and help our mates go thru this yet my husband is taking this whole thing like it is my fault, when I got the appt date this morning he blew a gasket and started his tirade about how nobody gives a damn about him. Well he keeps this attitude up and there will be NO one around at all as he is driving me further and further away. He postponed countless drs appts and blood tests and even after his biopsy he postponed the next appt to get the results, denial or fear of the unknown I suppose, but absolutely no excuse. I know he is scared and upset and all the other emotions that he is feeling but that is certainly no excuse for treating me like garbage. Have any of you other wives or S/O's experienced this? I have tried to talk him inot counselling but so far he says he will not go. I am hoping his new dr or the oncologist will suggest it or tell him flat out it would be helpful. I just looked at the calendat, and even though it feels like months have gone by it has not even been a full month since we found out he has cancer. I have spent countless hours on the phone and puter trying to get it all co-ordinated and trying to get all his prescriptions renewed with at least 3 refills so we do not need to worry about the hassle of getting new dr to refill timely. I am running into that right now as I changed drs recently due to cost of driving so it will take a while to get all that fixed up...been there done that with drs change and how slow everyone is no matter what you tell anyone. This is running into book length here but this is the one place where I feel safest venting as I know everyone here has gone thru at least some of the same stuff were dealing with. I do know, next year at open season I will probably opt for a higher cost ins. policy, maybe a ppo or one kind of like my daughter has...it is just this ins was the more reasonable, and the actual benefits are good without all the hoopla of out of pocket expense and big deductibles. I just feel so alone and so abused when all I have been doing is what anyone else would do under the same set of circumstances...which is do as much as I can to get it all together so it happens and I do not expect or even want him to crown me queen martyr for the day, a simple thank you and I appreciate how hard you have worked for me would suffice. I hope this does not sound like I am trying to make this all about me because it isn't. I lay awake at night worrying about him and what is down the road for him but I guess I am old fashioned enough to believe that marriage is a partnership and for the most part we need to be working together as 1 for the common good of the relationship. I don't think I am amazing, but I think I work hard to care for everyone here in my house and then I feel like I just get my teeth kicked in because the appts are not soon enough or options are not fast enough and it is plain not my doing. Sheesh the oncologist is on vacation for 2 weeks, from the 1st to the 14th of July and Bill has the 1st appt on the 15th and he gets angry and gripes that the dr doesn't understand he has problems...go figure. Well enough of the pity party, but I am satisfied now we got everything together on this end dr-wise...I couldn't have done better under the situation. You all take care and I hope you all are feeling better and doing better.