Premature birth (also known as preterm birth, or premie) is defined medically as childbirth occurring earlier than 37 completed weeks of gestation. Most pregnancies last about 40 w...
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Hello! I'm new and here is my story.
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It was April 13th 1983 at 6:30 in the evening. I was born in my mother's 5th month of pregnancy, which in turn made me 4 months premature. I weighed 1 pound and 3 ouces at birth. After I was born I had a brain hemorrhage that almost took my life, but the doctors were able to get it under control. I had my first surgery being just hours old. The surgery was to close a valve in my little heart. I was supposed to e born in August but I came early.
I stayed in the hospital for the first four months of my life. I was so premature that I had to be transferred to North Memorial Hospital after two of the four months at the hospital where I was born. While in the hospital my skin was so transparent that no one could hold me except the nurses and doctors that cared for me. My parents and family were not allowed to touch me because they could have peel off layers of skin which would have been very painful for me. My eyes and ears were still fused to my head and my digestive system was not fully developed at the time. When I was finally able to go home I had a heart monitor attched to me so that my parents could watch to see how my heart was working. I had no sound in my voice. When I cried no one knew unless they saw me with a sad face with tears in my eyes and down my little cheeks. When I was born the doctors thought I was not going to make it. They told my parents that they were going to put me on my mother's chest and let my family and loved ones say their final good-byes and then wait until I died. After having gone through this hard and almost fatal experience I have learned to overcome the way I walk and talk. From this obstacle I have also learned to accept my disability, mild cerebral palsy. Posted on 06/21/08, 09:06 pm |
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Thanks for sharing your story. I have a son that was born at 25 weeks and weighed 1 pound and 13 ounces. He went through so much as a baby, but he is now 4 and you would never know he was a premmie. Other than a slight eye problem that surgery and glasses has taken care of, he is now fine. It is nice to see someone like yourself, who has come so far since your first days of life. You brought a tear to my eye when you wrote that part about not being able to be touched by anyone for so long after you were born. My wife and I cried everyday until we got to hold our son. If my memory is correct, he was about 3 weeks old when we first held him, so I know the emotional pain your family went through on that part. God bless and I wish you well. 
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HELLO AND I AM HAPPY THAT YOU ARE MAKING IT AND THAT YOU HAVE OVERCOME SO MANY OBSTACLES. I HAD A BABY IN JUNE 30TH 2005 AND HE WAS BORN AT ONLY 25WKS AND HE ONLY LIVED 90MINS BECAUSE HIS LUNGS WERENT FULLY DEVELOPED. SOMETIMES I WONDER IF HE DID MAKE IT WHAT WOULD HE BE LIKE WOULD HE HAVE MULTIPLE PROB'S OR WOULD HE B LIKE YOU SOMEONE WHO IS THRIEVING AND HAPPY TO HAVE HERE? I ENDED UP HAVING ANOTHER BABY THE NEXT YR JUNE 29TH 2006 AND HE WAS BORN AT 33WKS AND HE WAS IN THE NICU FOR TEN DAYS BUT THEN CAME HOME HE IS DOING GREAT ! MATTER OF FACT HIS 2YR BDAY IS NEXT WEEK WHAT A BLESSING HE WAS. SO I AM SO HAPPY THAT YOU ARE HERE AND THAT YOU GIVE LADIES HOPE THAT THEIR BABIES EVEN KNOWING THEY WERE BORN EARLY HAVE A REAL CHANCE A HEALTHLY HAPPY LIFE !
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Thank you for sharing your story. I am a mother of a 10-year-old beautiful girl who was born at 27 weeks' gestation after my complications with HELLP and nearly dying myself.She has overcome so many obstacles. She spent 3 months in the NICU but the first 2 were so rocky. It was the biggest emotional roller coaster I have ever been on. She had 2 intracranial hemmorhages that were grade 4 and left her with mild cerebral palsy. They did not give us a lot of hope but I just could not give up on her. She had retinopathy, PDA, and everything you could imagine. When she was 6 months old she was diagnosed with a tumor behind her right eye. We rushed her to Rochester, MN and she underwent surgery to find out it was a benign tumor but leaving her vision impaired. Once again God answered our prayers and it was not anything worse. My little miracle has been through extensive therapies, speech therapy, OT, PT and has really done so well in my eyes. She does have apraxia and they say she is cognitively delayed (they have labeled her) but she is catching up amazingly. I have taken her to Brain Gym trainers and I know that really helps her and her teachers have noticed a significant difference especially in her speech, attention span and even socially. I worry about her at school because she might be picked on or be left out on the playground because socially she is so reserved and such a loner. She is hard to understand at times and I think she is starting to realize that, but I think she sounds beautiful when she talks. Her first word was momma and she was nearly 2 years old. She does get awfully discouraged at times when we just cannot understand what she is saying. I have been at the park with her when other kids ask "Why do you talk funny?" I just want to protect her from all that, but I have to let go. I have even driven by at recess just to make sure she is being included as I know she has been picked on and left out in the past. She would never tell me that, but fortunately she has an older brother who looks out for her. I will never give up on my miracle baby. She has amazed me since the day she was born and her will to live.
Your story was so inspiring and you sound like such a beautiful person. You are truly a miracle and GOD BLESS YOU!!!
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