What is Porphyria
The porphyrias are inherited or acquired disorders of certain enzymes in the heme biosynthetic pathway (also called porphyrin pathway). They are broadly classif...
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Saturday July 26, 2008
STORY WALL
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The day goes on endless in time, waiting for the night to come.The suns bright rays burns my eyes, and boiles my flesh. So much pain to have for onewho loves living in the day. The endless day g...
by: Dimondspa...
an Inspirational Story
1 Recommendation
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More »MEMBER PHOTOS
More »LATEST STORIES
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The day goes on endless in time, waiting for the n...
Dimondspa... Jul 25, 2008
Friday, July 25, 2008 |
The day goes on endless in time,
waiting for the night to come.
The suns bright rays burns my eyes,
and boiles my flesh.
So much pain to have for one
who loves living in the day.
The endless day goes on.
Living in darkness is my
only relief from the hurtful day.
Living in the light is only a dream to me.
A dream that can not be touched.
The darkness is my home now.
The cool, crisp, quite night.
Whe...1 Recommendation -
Finally yesterday they were able to take an entire...
echo1over... Jul 02, 2008
Wednesday, July 2, 2008 |
Finally yesterday they were able to take an entire unit of blood. My veins are not working lately. However I am happy for small progress. Due to my hemochromatosis my iron is quite high. However by taking my blood my coproporphyria does not show it's ugly head.........1 Recommendation -
As I sit all alone.Alone in the dark.With only the...
Dimondspa... Jun 26, 2008
Journal Entry for June 26, 2008
Thursday, June 26, 2008
As I sit all alone.
Alone in the dark.
With only the moon and the stars to light my way.
The earth is still.
She is slighent.
I sit to listen.
I close my eyes and see.
I see the past,
The hurt, and the constant pain.
At least the star lit skyies will always be there for me.
And the moon shall forever light my path to walk upon.
All alone in the dark.
All alone in the world.
1 Recommendation
1 Comment -
Close your eyes, and take to the night.Light the f...
Dimondspa... Jun 24, 2008
Tuesday, June 24, 2008
Close your eyes, and take to the night.
Light the fire of desire.
Fill the emptiness in me.
Warm the chill of my bones.
The darkness aches.
You can't turn back.
The night bleeds of my thirst.
Take me to the edge of peace.
There is no answer to my question.
Take illinoisan to the skies.
I have waited for so long,
Forever in the night.
If you love something, let it go.
If it doesn't return, hunt i...1 Recommendation -
My test results for week 12 of TX did not come bac...
Dave1358 Jun 12, 2008
Thursday, June 12, 2008
My test results for week 12 of TX did not come back favorable, my viral load is still detectable and the doctor wants to extend treatment from 48 weeks to 72. Statistic are that if a person is not a early responder by week twelve there is a 97% chance of relapse, early responder is defined as zero viral load and or > .2 log drop which I did achieve. Well this has been one pretty tough de...8 Comments -
Wonder why,We can live a life,That is left untold?...
Dimondspa... Jun 12, 2008
Thursday, June 12, 2008 |
Wonder why,
We can live a life,
That is left untold?
Look around,
The world gose round,
And just let life pass you by.
A man holds a child,
To see it in his eyes,
A sparkle lite shining.
A young widow sings,
A sorrowful cry,
Lost in the winds.
Tell me,
How can you know,
When a heart is in ruin?1 Recommendation3 Comments -
got PICC line inserted and started IV rocephin for...
JenTahChass Jun 03, 2008
Journal Entry for June 3, 2008
Tuesday, June 3, 2008
got PICC line inserted and started IV rocephin for the lyme finally and doc just requested another 2 weeks. confused what happens from there...
have been so sick and nauseaus and having family crisis as well unfortunately.
been having a problem where my eyelid will droop down really bad. does anyone know about this? i thought it was a neurological symptom from herxing from the abx...2 Comments -
Candles raise my desire.Black satin.Blue passion.I...
Dimondspa... Jun 01, 2008
Sunday, June 1, 2008 |
Candles raise my desire.
Black satin.
Blue passion.
I feel so far away.
Midnight.
Full moon.
In the night for a brief.
Far away.
Alone with you.
We dance to the rhythm of our beating hearts.
Candle lite.
Mirrored room.
Casting shadows of dark love.
Red wine.
Green eyes.
And then the taking of our innocence.
Our dark union.
Forbidden love.
My need and your desire.
My ancient heart.
Your reborn soul.
At the midnig...1 Recommendation5 Comments -
No one can better this.The moon will rise and fall...
Dimondspa... May 28, 2008
Wednesday, May 28, 2008 |
No one can better this.
The moon will rise and fall,
and he will be there.
But I'll be there falling.
As the world falls down.
Long days, long nights.
We were meant to be.
Don't want to love alone.
Our union of ancient hearts,
come to gather as one.
Two halves of the same whole.
When you pass, I am lost.
My time is at an end.
Century's pass.
Lost hearts, but not forgotten.
Born again.
In search of t...1 Recommendation2 Comments -
I lost my only friend.Take a lover.Listened to...
Dimondspa... May 19, 2008
Monday, May 19, 2008 |
I lost my only friend.
Take a lover.
Listened to him through the cemetery trees.
I laugh at the ceremony.
I am standing for a reason.
I ran until there's nothing left.
I dance in the cemetery.
You left me with heart ache.
Somewhere beyond this life.
In the back of my mind it has risen.
Where do you go?
I want to know.
Every night until dawn you had been there.
And now you are no more.
I had whispered ...1 Recommendation2 Comments -
Close your eyes, and and g...
Dimondspa... May 16, 2008
Friday, May 16, 2008 |
Close your eyes,
and and give me your hand.
Let the music play of life,
and dance in the night,
forever free.
Your heart whispers to mine of untold love.
Winter chill takes your breath away
A soft nights breeze, plays in my hair.
Take me away, to a secret place.
There is magic in the night for only us.
I dance in the night of my fantasy.
You are a strange...1 Recommendation4 Comments -
...
Dave1358 May 13, 2008
Tuesday, May 13, 2008
June 1st will be my day to face a emotional challenge that I’ve buried since I was a kid. I was born with Congenital Heart Disease (CHD) and in 1969 I underwent open heart surgery to repair some of the problems. The entire experience from the time I was nine to my early twenties left me a cold and emotionally void person, ba...13 Comments
Friday, July 25, 2008 |
The day goes on endless in time,
waiting for the night to come.
The suns bright rays burns my eyes,
and boiles my flesh.
So much pain to have for one
who loves living in the day.
The endless day goes on.
Living in darkness is my
only relief from the hurtful day.
Living in the light is only a dream to me.
A dream that can not be touched.
The darkness is my home now.
The cool, crisp, quite night.
Whe...1 Recommendation -
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More »MEMBERS IN NEED
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February 10th I got a call from Mom's home health aid that she was having trouble breathing and was taken to the E.R. I threw an overnight bag together in a flash, drove the 50 miles to the hospital in Palmdale, CA., made it through security and headed for her room. I was stunned to see that she'd been intubated and was obviously gone. Mom had been at that E.R. many, man...1 Recommendation
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More »INSPIRATIONAL STORIES
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When my life ended, it began century's ago.
The pain of my body dying.
The sun setting on this eve.
The sounds of the waves crashing on the cliffs were fading.
The shock of a wave of pain shook my body.
My breath had ceased for that moment.
Tears welled up on my lashes.
Then the pain had faded and I took another breath.
He whispered that it would be over soon.
To had loved some one as to ...1 Recommendation1 Comment
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More »POETRY CORNER
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The day goes on endless in time, waiting for the n...
Dimondspa... Jul 25, 2008
Friday, July 25, 2008 |
The day goes on endless in time,
waiting for the night to come.
The suns bright rays burns my eyes,
and boiles my flesh.
So much pain to have for one
who loves living in the day.
The endless day goes on.
Living in darkness is my
only relief from the hurtful day.
Living in the light is only a dream to me.
A dream that can not be touched.
The darkness is my home now.
The cool, crisp, quite night.
Whe...1 Recommendation -
Candles raise my desire.Black satin.Blue passion.I...
Dimondspa... Jun 01, 2008
Sunday, June 1, 2008 |
Candles raise my desire.
Black satin.
Blue passion.
I feel so far away.
Midnight.
Full moon.
In the night for a brief.
Far away.
Alone with you.
We dance to the rhythm of our beating hearts.
Candle lite.
Mirrored room.
Casting shadows of dark love.
Red wine.
Green eyes.
And then the taking of our innocence.
Our dark union.
Forbidden love.
My need and your desire.
My ancient heart.
Your reborn soul.
At the midnig...1 Recommendation5 Comments -
Close your eyes, and and g...
Dimondspa... May 16, 2008
Friday, May 16, 2008 |
Close your eyes,
and and give me your hand.
Let the music play of life,
and dance in the night,
forever free.
Your heart whispers to mine of untold love.
Winter chill takes your breath away
A soft nights breeze, plays in my hair.
Take me away, to a secret place.
There is magic in the night for only us.
I dance in the night of my fantasy.
You are a strange...1 Recommendation4 Comments -
With out you, my world is a bleak existence.With o...
Dimondspa... Apr 28, 2008
Monday, April 28, 2008 |
With out you, my world is a bleak existence.
With out you, I am cold and alone.
With out you, I live in chaos.
With out you, I can't get away from the darkness.
I need your light that brought the smiles to my face.
I need your warm skin next to mine.
I need the very breath that you gave me once.
With out you, it is impossible.
With out you, my soul dies with each passing day.
With out yo...1 Recommendation4 Comments -
Missing you.To touch you once more.To hear you cal...
Dimondspa... Apr 06, 2008
Sunday, April 6, 2008
Missing you.
To touch you once more.
To hear you call my name.
It hurts so painfully.
I would wake up still crying as if,
that day you left was today.
The first kiss that we had shared.
The harmless games we use to play.
I am still missing you.
When you had left this world,
you had left me a gift of a lifetime.
She has your warm smile.
When she looks at me with those eyes,
there is a twinkl...2 Recommendations3 Comments -
Wonder why,We can live a life,That is left untold?...
Dimondspa... Jun 12, 2008
Thursday, June 12, 2008 |
Wonder why,
We can live a life,
That is left untold?
Look around,
The world gose round,
And just let life pass you by.
A man holds a child,
To see it in his eyes,
A sparkle lite shining.
A young widow sings,
A sorrowful cry,
Lost in the winds.
Tell me,
How can you know,
When a heart is in ruin?1 Recommendation3 Comments -
When we met, we were one.We laughed together.We cr...
Dimondspa... Apr 04, 2008
Friday, April 4, 2008 |
When we met,
we were one.
We laughed together.
We cried together.
We knew what one anther was thinking.
Then you got sick. A part of me fell ill.
I waited for you to get better.
You had got worse.
The light in my life was fading.
What do I do?
You had taken your last breath with my name.
My soul had died at that moment.
No more laughing.
No crying.
All went numb.
My life left me.
My heart ceased to beat.
I died...1 Recommendation3 Comments -
No one can better this.The moon will rise and fall...
Dimondspa... May 28, 2008
Wednesday, May 28, 2008 |
No one can better this.
The moon will rise and fall,
and he will be there.
But I'll be there falling.
As the world falls down.
Long days, long nights.
We were meant to be.
Don't want to love alone.
Our union of ancient hearts,
come to gather as one.
Two halves of the same whole.
When you pass, I am lost.
My time is at an end.
Century's pass.
Lost hearts, but not forgotten.
Born again.
In search of t...1 Recommendation2 Comments -
I lost my only friend.Take a lover.Listened to...
Dimondspa... May 19, 2008
Monday, May 19, 2008 |
I lost my only friend.
Take a lover.
Listened to him through the cemetery trees.
I laugh at the ceremony.
I am standing for a reason.
I ran until there's nothing left.
I dance in the cemetery.
You left me with heart ache.
Somewhere beyond this life.
In the back of my mind it has risen.
Where do you go?
I want to know.
Every night until dawn you had been there.
And now you are no more.
I had whispered ...1 Recommendation2 Comments -
The black rose sits alone in a garden. Surrounded ...
Dimondspa... Apr 25, 2008
Friday, April 25, 2008 |
The black rose sits alone in a garden.
Surrounded by those of white,
red, pink, and even orange.
The rose of black is all alone in a world of color.
The other roses won't even look towards her way.
Why?
Because she is different?
Or maybe, that she is the most lovely of them all?
When the morning comes.
And the dew has settled on her petals.
She shines more than all of the color roses.
The dew drops ...1 Recommendation2 Comments -
At dusk, I will rise.Hunger beats at me.To hunt is...
Dimondspa... Apr 21, 2008
Monday, April 21, 2008 |
At dusk, I will rise.
Hunger beats at me.
To hunt is not human.
I am a beast.
When the night calls.
To watch you from the shadows.
I can smell your fear.
You know I am here.
You thought me long dead.
My life of warmth
and love was taken.
When the night calls.
He was there when I had changed.
It was he, that had mad me who I am now.
The memories of the sun fills me with sorrow.
I am condemned to a life of...1 Recommendation2 Comments -
To ease my troubled mind,I watched the world...
Dimondspa... Apr 02, 2008
Wednesday, April 2, 2008 |
To ease my troubled mind,
I watched the world.
Through eyes of the night,
you took for granted.
I wonder if you can tell,
there's no pretending.
Lost in my emotions.
Every single night you belong to me.
I long for your embrace.
You are like liquid fire in my veins.
On this endless ocean of fears,
of all the centuries I've been through,
Nobody has ever made me feel this way.
Turning every turn ...1 Recommendation2 Comments
Friday, July 25, 2008 |
The day goes on endless in time,
waiting for the night to come.
The suns bright rays burns my eyes,
and boiles my flesh.
So much pain to have for one
who loves living in the day.
The endless day goes on.
Living in darkness is my
only relief from the hurtful day.
Living in the light is only a dream to me.
A dream that can not be touched.
The darkness is my home now.
The cool, crisp, quite night.
Whe...1 Recommendation -
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