What is Porphyria

The porphyrias are inherited or acquired disorders of certain enzymes in the heme biosynthetic pathway (also called porphyrin pathway). They are broadly classif...

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My fiance Burton, is crashing fast. He cries all day because of his pain and nausea. He's on disability, and i wonder if that's why he receives hardly any treatment from hospitals and doctors.
Burton has turned into a skeleton...you can see every bone in his body.
I feel like the doctors think he a druggie because of his appearance. (actually some have said that to his face) Every attack he has, the stomach pain, the vomiting the anxiety make his nerves go numb. He has a portacath in his chest. He's even been given legit statements from other doctors to tell emergency what he needs treatment for.
I'm so scared...he's my life. Not many doctors know about this he said. They told him it wasn't terminal, but i see him get closer to death every day.
SOME ONE PLEASE, PLEASE...HELP! I CAN'T STAND SEEING HIM SUFFER EVERY SINGLE DAY OF HIS LIFE. WE'RE BOTH TERRIFIED!

thank you for reading this...any advice would help.
we have'nt much money...but there must be some doctor who can help him...please, before his body fails him. heidi xxxxx
Posted on 12/21/07, 11:12 am
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