Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (...
|
newbie
|
Watch this |
| View More Posts Ignore |
Hello everyone, My name is joel schneider. I was diagnosed with PKD last Monday. If anyone has any resource materials,links, books, magazines... Hell anyone got a pamphlet? LOL! seriously though any help info would be much appreciated.
Posted on 03/13/07, 01:03 pm |
| 5 Replies | Add Your Reply |
| View More Posts Ignore |
Hello, welcome. I am so glad to see another PKD face to chat with. I am always here if you need to talk. www.pkdcure.org is a good place to start. 
|
|
|
|
||
| View More Posts Ignore |
Ashley... me too. Been feelin kinda alone if you know what i mean. Dropped classes this semester, maybe looking for work but for now at home alone... no good. However this website is sweet. other than my mother u r the first person w/ this I have spoken to.
|
|
|
|
||
| View More Posts Ignore |
Awesome! I love to have people to talk to and it helps so much to talk to people that are going through the same thing.
|
|
|
|
||
| View More Posts Ignore |
agreed... It is a pleasure to meet you.
|
|
|
|
||
| View More Posts Ignore |
Hi! I went to a website, www.medifocus.com, I ordered a hard copy of their guidebook. You also get access for a year to the guidebook online. It has all the info on all PKDs. You'll see the new research for that year. Also, it shows all the doctors, researchers, and studies that are being done. How to choose a doctor.
I forgot how much it costs, maybe $30?
|
|
|
|
||
My aortic root has enlarged from 3.8 cm to 4.1 cm in 6 months. has anyone heard of this associated with PKD?
Does anyone read the News & Info? It states that PKDers have cells with deformed cilia. It also says one symptom …
Does anyone know any good websites to ask for a kidney besides matchingdonors.com? Does anyone know of any personal …
