Polycystic kidney disease (PKD) is a progressive, genetic disorder of the kidneys. It occurs in humans and other organisms. PKD is characterised by the presence of multiple cysts (...
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I am a 42 year old woman who has had several uti's, bladder infections, and 9 kidney stones in the last 7 years. I had a younger sister who was born with cysts on her kidneys and died within the first few hours of birth. My family has never had any genetic work done so I don't know if pkd is in my family. My father is deceased (cancer) and my mother has no symptoms of pkd. I have recently started to have pain in my right flank with nausea but this is a different pain that almost feels like a burning sensation (very deep) and hurts with the more activity I do. I have always had micro. blood in my urine but my doctors cant find an explanation. So, if my sister died of cysts on her kidneys and I have had a history of kidney issues is there a possibility I may have pkd? Any suggestion or advice would be greatly appreciated.
Posted on 05/08/08, 04:05 pm |
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After reading your post, I get the feeling that you haven't been diagnosed with PKD. In any case, you should start with that. An ultrasound can determine if you have PKD. You should also find out what actually happened to your sister.
Every baby born in a PKD family has a 50% chance of having it. All can have it or none can. Although uti's, bladder infections, and kidney stones are sometimes symptomatic in PKD. They are also symptomatic of other diseases. You should check on the Kidney Stone Community. Almost all of the people there aren't PKDers (I'm part of the almost). You may just be prone to make kidney stones or you have to adjust what you eat. Less protein, less salt, and less oxalates. Drink more water. You'll have to make it a lifestyle change. I get the pain but no nausea. Kidneys are the midback area, separated by the spine. Many PKDers are using heating pads to deal with the pain, but for KStoners, I think the heat may cause a stone to form faster. Some people with PKD have micro blood, but it may be something else and you'll have to do the "oh so fun!" CYSTOSCOPY to find out. 
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WATERRAT IS RIGHT. I'M AN RN WITH PKD YES YOU MUST SEEN AN KIDNEY DR.ULTRA SOUND IS A EASY .DO IT NOW SO YOU CAN CHECK HYPERTENSION. URINE INFECTIONS DUE TO CALICUM WHICH ALSO HAS TO DO WITH PKD.BEST OF LUCK.
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Thanks so much for your information. I know that on my baby sisters death certificate it states cysts on kidneys and poor lung development. When I have had kidney stones in the past it has always hurt me on my right side in the flank area down to the groin which is what has been going on now for a week and a half but has been tolerable. I have also been diagnosed with a fatty liver and wonder if this is also a symptom of pkd. I know that you are probably wondering why I just dont go to the doctor and find out but I currently dont have health coverage and my funds are very slim right now. Thanks again.
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The thing with PKD is that you are not diagnosed with it till you have a lot (over 6) cysts but you can have symptoms long before that and the doctors will find no cause and tell you ,your fine till years later you are covered in cysts .how old are you ?? a lot of people dont form cysts till they are over 40 sadly a lot of younger people here have huge kidneys already....When babies have cysts it is often but not always ADPKD the recessive form of PKD and that you cant have because you would not have lived this long if you did ...As for family history ,well we don’t all have that because until ultrasounds were invented a lot of people did not get diagnosed anyway...only if they were very obviously died of kidney diseasep...My grandparents both died from brain aneurisms ,a side affect of PKD ,one of them passed the gean onto the family but I have no clue who...as I don’t know any extended family. I know my uncles and mother had it but no one else.
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oh sorry I just read your age ,must have missed it the first time ..lol ...you could have just started to form cysts...you may not even get told you have them if there are not enough for a clear diagnosis. I am the same age as you ,do not have a lot of cysts yet ,just enough and I had non a few years ago but have always had UTI and micro blood. I got pain about a year ago for the first time and now cant drink coffee with out pain.....my mothers only symptom is her blood pressure...one uncle is dead from kidney failure and one has been on dialysis for 15 years...mother was lucky ,I hope I am too.
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I am a 55year old male,that was diagnosed in 1992 with the PkD, since that time I've learned so much about it,even though it is painful to know what the end result could be unless a cure is found...there are many things that we can do to slow the process and live a normal quality filled life, and the main treatment starts with changing our diet and keeping our kidneys flushed regularly. I must leave now but I will return later to share more with you!!
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HELLO FRIENDS WITH PKD CHECK THIS OUT: PKD@PKD.ORG JUNE 2008 E-NEWS BRILLANT EATS NOW AVAIABLE. ENJOY WITH PLEASURE M
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