Phenylketonuria [PKU] is a human genetic disorder (though it is possible to exist in mice), in which the body lacks phenylalanine hydroxylase, the enzyme necessary to metabolize ph...
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i have to get my protien levels down to a safe point before my husband & i start trying to have children. i have to drink 3 lophlex a day. the other day a nurse called me up with my test results & said thet my levels were not falling quick enough & that now my diatitian wants me to have 4 lophlex a day. it is really hard fitting 3 in a day now i gotta do 4. my reation was " what 4 are you serious? its so hard with 3?"
anyway she ended up cracking the shits at me 7 telling me that they can only help me a certain aount & the rest i got to do. i told her i know that but its just been really hard adjusting to the diet, having to eat less but more often & the lophlex. if i had her in front of me i would of slapped her! she continued to yell & tell me that if wanting children was not enough to make me do it than maybe i should not be having kids. she pissed me right off!!!! who the fuck is she to tell me that! i wnt kids! this has been a real change in my life & its hard! i know i have to deal with it but you dont say things like that to people who cant have kids the easy way. fuck her!!!!!! Posted on 03/31/08, 06:03 pm |
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Wow... That's terrible. I've feel your pain, well not with the whole children thing (I'm only 21... thats a few more years in my future)... but I feel like sometimes people at the clinics feel like it's a lot easier than it is! I was eating a pretty relaxed pku diet... not counting exchanges/phes, and decided to go back strictly, just for my own health. Well, I am apparently only allowed 10-20 exchanges a day... And they were all talking like it was no big deal to eat the pku pasta everyday and basically have no variety in my diet. It is soooo frustrating sometimes!!!! 
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i am trying to get my protien levels down to a safe level so my husband and i can have children. i cant get get my …
I have been going to my local clinic once a week to get my diet back under control. I have not been drinking formula …
whats going on people? not much action on the pku discussion. does no body have any thing to say?
