What is Phenylketonuria PKU

Phenylketonuria [PKU] is a human genetic disorder (though it is possible to exist in mice), in which the body lacks phenylalanine hydroxylase, the enzyme necessary to metabolize ph...

Join Now

Free, anonymous support from people just like you.

Spread the Word!
Get a DS flyer to post
DS Store is Open
DS t-shirts and more
Discussion:
pku- eating out
Watch this 
View More Posts
went to a wedding, told them i was vegetarian because they had no clue what pku was. the food sucked ! one of the meals was peas & masshed potato while every one else had peas, mash potato, rice, meat with sause. they get a 0 for effort!Does any one else think that not many places cater for vegiterians?
Posted on 01/27/08, 05:01 pm
RATE THIS POST:
Inspirational
Moving
Helpful
Creative
4 Replies Add Your Reply
Reminder: This is a support group for Phenylketonuria (PKU). We trust you will do your best to remain positive and helpful. For more information, see our rules of the road.

You may also create your own Member Groups where you can moderate the discussion.
Comment:
Email me when others reply to this topic help
View More Posts
Reply #1 - 02/04/08  12:35pm
" u are so right "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative
View More Posts
Reply #2 - 02/08/08  9:32am
" i just don't ever eat out...no one ever has anything you can eat. Nobody knows what PKU is unless you have it then come the awkward ness of having to try to explain it. How hard woulo it be to provide fruits and veggies... not all of us can be carnivors "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative
View More Posts
Reply #3 - 03/03/08  11:45am
" We almost never eat out. I cook for Josh at home. But I do know that when Josh hangs out with friends or goes to his all day paint ball games he comes home so hungery.. There is never anything he can eat. "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative
View More Posts
Reply #4 - 05/09/08  4:15pm
" I rarely have a problem eating out. I have classical PKU and usually order a salad or a side of fries and only eat a few. If I'm out to dinner, usually I save room during the day so I can order pasta and eat like a quarter of it. It depends on the portions and your specific diet, but its a rarity that I CAN'T make it work. "
RATE THIS REPLY:
Inspirational
Moving
Helpful
Creative


Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Copyright 2008 DailyStrength, Inc. All rights reserved. Terms of Service | Privacy Policy | Report Abuse