Pemphigus Support Group

husband been on prednisone 6 weeks now 2 weeks on 60mg then reduced to 40mg this week pemphigis has spread from scalp to shoulders if anything it seems to be feeding it

From my experience, and what I heard from other pemphigus patients, its best to start very high prednisone dose and remain until there is stopping of disease activity. I started at 80 mg and stayed on it for over a month and only moved to 60 mg when there was minimal disease activity. I got most of my questions answered from the International foundation for pemphigus and pemphigoid.
Thanks
kamalanl

I have been on Prednisolone for about 6 months. I was initially on 50mg per day but an down to 15. I wotked very well however there are some side effects. You should take a calcium supplement and a vitamin D pill to prevent leeching of calcium from your bones.

You should consider taking a stomach acid suppressant such as Nexium to prevent ulcering (one of the lesser known side effects of cortisone use - discuss with your Doctor)
Predisilone is a vety strong drup which has substantial effects on oyur body - when you start to reduce your use of iy start to do so a very slow rate, reduce the dose by, say 5% for five days a a time.