Parkinson's Disease Support Group

hi, without knowing your location, my suggestion is to just ask your pd dr for some names. normally they are anxious to connect patients who is looking for support. Also remember we are all in the same room as you,so you've already found a bunch of shakey people to enjoy life with. God's blessing upong you.

No Dear Heart,it doesn't get any better but if y0u keep a postive attitude and exercise 20r3 times a week you will feel better about yourself.
God Bless,
:Lee

Thanks for the replys was wondering if this is a mostly american site, I'm from Bangor N Ireland an just wanna say hi to you all wherever you are x

Yes, sweetie, it DOES get better. But "better" comes in many forms like acceptance and medication. Also, prayer, nutrition and exercise are key. The changes in your body and your life right now are scary and confusing. Try to talk to others who understand. God bless.

HI I also found it really hard to accept that l had pd,,, l still fight it all the way.

I truely believe that these things can help,,, reduce your stress levels, meditate, and above all you must excercise. I try to walk as much as possible


And with an attitude like that,,, YES it does become better, dont let anyone tell you it doesnt,, good medication also helps.

And being positive that a cure will be found, because l am positve that one will

Chin up and keep smiling, we dont have a death scentence, like some poor unfortunate souls, so l guess as having a disease, we have a fairly managable one

One more thing that might make you feel happier, go to this link, this i found inspirational, gave me hope.

http://video.google.com/videoplay?...

I hope the link works, if not copy and paste into your browser

Hi Bango, I'm saddened to see someone so young and lovely has this awful illness. I've had PD 16 yrs was diagnosed aged 33 and have a good idea what a diallema you're going through.
In life we are all individual and it's the same with PD, no two sufferers are exactly alike, we are all on the same journey but going at different speeds, but progression is usually very slow, other health aspects like strokes may speed up progression.
You must try not to get too despondant about it and I know it's easier said than done, and what I think is very important is to have a positive attitude in all you do and stay as active as possible and keep yourself occupied. If you're fortunate enough to be working then that is brilliant.
Surround yourself with family and true friends the ones you can really trust and you won't go far wrong.
You've done one great thing already, and that's joining this lovely supportive group of people here on DS.
There's no cure for PD yet, but there are some great meds out there, but what might be OK for one,won't be OK for another, it's all swings and rounabouts I'm afraid Bango.
It will get worse, they can only slow it down, but hopefully progression will be slow.
I see you're from Ireland I'm from over the water in Sheffield.

I wish you well and take care
Yours Sincerely Dirk ;-))xx

Hi Bangormade, when I read your post, it so reminded me of myself. Exactly the same thing going from being very independent to being very dependent on your partner or husband. Totally not accepting that you have anything wrong with you. Hating going for check ups or to the hospital for anything. Well now ten years on I know I have PD and know I have to accept help. It does get worse, there is no denying that, but fight it you must, I have made that a bit of a challenge. Get as much exercise as you can and most of all DON'T shut yourself away, we need friends and relatives to make us laugh, to keep us company and offer a shoulder to cry on from time to time. Daily Strength is another friend and a good one because people you meet here really do know how you feel. We all care. Oh by the way I used to live in England in Staffordshire, but last year we moved to Crete. the weather here is decidedly better for Parkinsons. Take care Juels x

Bangormaid- First of all, "Cead Mil Faulte" (Onehundred thousand Welcomes) to the group. You are going to find that all here share pretty much two or three categorues. Those who are care givers, those who have P.D. and have partners and those, like me, who have no one in their lives to help. In my case, here in Pennsylvania, I have been frtunate enough, though, to have a neurologist who took my present situation(A sudden divorce two years ago in the middle of all this P.D.) and made it more tolerable by finding me local organizations that help me with transportation and health issues that are difficult without a partner. Since you say you have a partner, the biggest thing that you a sufferer should realize that, in order to make things easier for all concerned, is that they too have needs and deserve theirtime,too! They have to "decompress" in order to stay sane as they too are afflicted by Parkinson's. I believe that if you permit them their time, you will gain your own independence. Stay together, but know that things will be alright if the two of you keep just a little bit of your own worlds.

Bangormaid- First of all, "Cead Mil Faulte" (Onehundred thousand Welcomes) to the group. You are going to find that all here share pretty much two or three categorues. Those who are care givers, those who have P.D. and have partners and those, like me, who have no one in their lives to help. In my case, here in Pennsylvania, I have been frtunate enough, though, to have a neurologist who took my present situation(A sudden divorce two years ago in the middle of all this P.D.) and made it more tolerable by finding me local organizations that help me with transportation and health issues that are difficult without a partner. Since you say you have a partner, the biggest thing that you a sufferer should realize that, in order to make things easier for all concerned, is that they too have needs and deserve theirtime,too! They have to "decompress" in order to stay sane as they too are afflicted by Parkinson's. I believe that if you permit them their time, you will gain your own independence. Stay together, but know that things will be alright if the two of you keep just a little bit of your own worlds.