Parkinson's disease (paralysis agitans or PD) is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement (bradykinesi...
|
PD and Chronic Pain
|
Watch this |
| View More Posts |
My Dad has suffered from Parkinson’s for around 15 years. He does not suffer tremors but his main issue is chronic pain linked to both Parkinson’s and problems following a Girdlestone operation (removal of hip joint) around 5 years ago. The pain is not linked to infection.
He can only lie on his left side or back, due to the painful condition of his right hip area. He cannot put any weight on his right leg without severe pain, and can only walk with either crutches or a walking frame. He suffers 24/7 chronic pain focused on his right hip, right knee, and the intervening muscles, Similar pain radiates up his right side and into the base of his neck. and across his lower back. Separate pain, which he ascribes to Parkinson’s, focuses on his right shoulder, and down to and beyond his elbow joint. This arrived in the last 18 months or so, and seems irrespective of use, or rest or application of heat. He is currently taking no pain medication whatsoever, neither analgesic nor NSAID, and has not done so for many months, due to inability to find an effective medicine or one which did not cause fluid retention. He has tried Morphine but this was found to give early undesirable side effects and little relief. Tramadol was taken intermittently for perhaps 3 years and gave no relief. Fentanyl was administered via spinal infusion during distraction of femur & pelvis but gave no relief. Paracetamol at below maximum dose gave no relief but resulted in fluid retention. Pregabalin and Gabapentin have also resulted in fluid retention. As have the following NSAID’s: Diclofenac, Ibuprofen, Naproxen, Piroxicam and Rofecoxib Have we run out of options or is there anything out there which anyone can suggest as the situation is desperate and we would appreciate any help anyone can provide. Many thanks Ettie Posted on 05/15/08, 10:05 am |
| 4 Replies | Add Your Reply |
| View More Posts |
I KNOW WHAT YOU MEAN. I HAVE CHRONIC PAIN. WHETHER IT IS PARKINSON OR FIBROMYALGIA. I REALLY DON'T KNOW WHICH ONE IS ACTING UP. PAIN PILLS HAS SO MANY SIDE EFFECTS. WHAT ARE WE SUSPOSE TO DO? 
|
|
|
|
||
| View More Posts |
Hi Dede
I'm sorry to hear you are in so much pain. Like you I just dont know what to do for the best. I dont know why but I find it difficult to believe that in this day and age there is not an effective drug that can relieve the pain that people suffer. The other symptoms of PD are bad enough without the constant excrutiating pain 24/7. It does seem that some drugs and combinations of drugs work for some people though so keep trying Dede. We will keep searching in the hope no doubt. Dont give up!
|
|
|
|
||
| View More Posts |
Hi Effie, I seem to have the same situation--PD with a girdlestone. However, although my leg keeps getting shorter (since 1999) I can't say I've had much pain from it since the fi9rst year. For a long time I waalked around on it until my leg gtot too short. My greater pai n comes from my messed up neck and the dystonia that characterizes my PD. Have you asked the ortho who didnthe girdlestone , or consulted another one? All that pain doesn't sound right to me. claudia
|
|
|
|
||
| View More Posts |
Hi Claudia
Yes, unfortunately we have consulted all sorts of specialists in all sorts of fields but without luck. Sorry to hear about your pain, have you managed to find anything which relieves it yet? Ettie
|
|
|
|
||
All the latest Parkinson's Disease news : http://viartis.net/parkinsons.disease/news.htm
Dementia in Parkinson's Disease http://viartis.net/parkinsons.disease/news/080410.htm
Parkinson's Disease : news, history, causes, treatments, symptoms, toxic causes, biochemistry, genetic causes, …
