Nystagmus is rapid involuntary rhythmic eye movement, with the eyes moving quickly in one direction (quick phase), and then slowly in the other (slow phase). The direction of nysta...
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I have it all the time - adult acquired nystagmus
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Some days its not around, other days its constant and mainly when I'm concentrating on something and when I'm around others. I realy want this thing to stop. I have an appointment with a neurologist in July - couldn't get an appointment earlier. Does anyone know if its caused by diabetes, psychiatric medications or extreme stress? I have or had all three.
I have a hard time coping with the problem as it distorts my vision and makes for very uncomfortable interactions with people. I try to explain but they still seem unnerved. My hopes to everyone that they have the average eye sight that most people enjoy. Blessings, Cheryl Posted on 05/23/08, 06:05 pm |
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Hello,
Do you drive a car? I did but when I got really tired the nystagmus would get worse. So the stress thing makes sense. I have had it from the moment I was born. I don't know any different. I do know that the farther away I look at something the harder it is to focus on the object. Freeway signs are hell! I can read them when I am just passing under them. Hang in there. There are drugs that can make it less. Ask your neurologist. I've never tried any. 
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Here's all I know.
Eat carrots. Sleep well. Maybe get a nice pair of sun glasses. Stress will make it increase. There are certain procedures, but they are risky at the moment. The American Nystagmus Network is a good thing to google. I also found a lot of information in a book called Navigating Nystagmus with your Doctor. Nothing that blew my mind, but its good to know the medical terms. The book emphasized that there is a lack of research in this area and that most places are ill equipped or uninformed about the latest research. I wonder if they'll ever find a cure in our lifetime. I was born with it as well and its hard to come to terms with. I don't drive and finding a career has been hard.
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noah is almost 11 months since i found out he has nystagmus i havent done alot of research. i dont know much about it.i …
Hi my niece whom is 10 month old has just been diagnosed with Congenital Nystagmus in both of her eyes, she was given …
